Showing posts with label endless night. Show all posts
Showing posts with label endless night. Show all posts
Monday, August 17, 2015
Where it sits
My bit of my mother's remains are nestled between a thick stone slab and the outer box of my brother's coffin, slipped there in a smooth wooden box by a persistent funeral director and a kind person at the Archdiocese who knew that spot, one spot down, was meant for her and not her 15 year old son whose life ended too early. Mom had always joked that she wanted to be with Dad and Hunter in the end. "Just sprinkle me around the edges," she said. "Nobody will ever know."
But she's there with a banded plaque that spans the marble, a three-person plot made out of the two. She thought about the options before she died, knowing she would be cremated, noting that our family plot was still an option in her small hometown in Kansas, talking about Africa and the ranch and of Dad and Hunter. So we divided her ashes, each taking a small part of her great legacy, to trail her earthly being back to the places she loved.
It's a curious thing to think about where your physical being will be after you die. Our people have always been buried with family, generations of people in the same acreage in small towns on the plains, still married through early deaths and lost children and all manner of combinations of life that came next. You were with your people, that man you married or the parents you lived with or the generations of people who stayed within the same range of life that makes a family a community. You can trace that lineage through the fading marble, lives made visible and marked and remembered.
I've never given much thought to where I want my remains to be after I've gone, never had that discussion with anyone outside of my then-husband. In those days of early marriage, I'd always assumed that we'd be together somewhere, ashes mixed, such a romantic notion. Cremation offers you that, a pause button, a hilarious pause button in some ways, allowing you to believe that if you are the one and only, there is life ever after together somewhere.
But life circumstances change, and change radically, and a new life requires you to consider these things anew. And the question of permanence keeps coming to me, of marking space and time, of having a sacred spot for your children to visit if they need to. A place they never go but can if they want to. And this notion of dividing suddenly feels weird, like the human form is elastic, stretched to the corners of the earth.
Even as I write this, my body craves the weight of place, one place, consolidated in its being. Permanence. The intimacy of ritual. The process of saying goodbye. The feeling of knowing where someone is. Not having a plan makes me feel unmoored and anxious.
Where will I go? What is special to me? What will be most important to my kids, most of all? Where is my soul most in touch with this earth? When I think about that one question, a few images appear: The sunrise over the fields at headquarters in Oklahoma, the evening sky in Santa Fe, driving into downtown Seattle on a sunny day, the tiles of the Rome train station, the south China sea at sunrise from the deck of a ship...it suddenly feels as easy for my kids to travel to these places and snap pictures as to fling the grainy remains of this body into any space. I'm adding this to the list of things to leave behind, the ideas and thoughts and what it would mean to remain upon this earth long after I'm gone.
1,640 miles away, I can imagine sitting in the cool marble room tracing the name of my sweet brother who came into this life 40 years ago today. That's where this sits.
Friday, September 6, 2013
And in and out of weeks and through a day
For my friend Lara Turchinsky, with whom I have sailed vast oceans. Thanks, my friend.
*****************************************************************************
“And [he] sailed back over a year
and in and out of weeks
and through a day
and into the night of his very own room
where he found his supper waiting for him
and it was still hot”
― Maurice Sendak, Where the Wild Things Are
My mother used to remark that every time she sat down in a movie theater, she would fall asleep. These were in the post-Dad-dying days where her burdens were heavy and, I suspect, nights restless. We would load into the car during that hot Oklahoma summer and in the cool dark of the theater she'd drift off until one of us would gently nudge her as it was time to go.
In the darkness of the music auditorium I have a similar experience. Away from handheld devices and computers diverting my attention, from conversations and questions and things needing to be done, I let my mind drift and wander. I visualize my life in snapshots and pictures. I let the music seep in and replenish the dry landscape of my harried mind and heart. Within this space, I have learned to let go.
Tonight I spent a good long while with a blue-period painting projected on my mind. Eyes upon the back of a woman sitting in a small boat, the water is flat, the sky and the sea enjoined in one monotone color. An arial view shows no land. There is no wind for the sail. There is no obvious way north, south, east or west; no clear direction and nothing propelling the boat forward.
It's not a frightening scene. Just dead quiet glassy water, humidity so thick you can feel it in your throat, close. It's a scene that is wistful for a cool breeze and for the clouds to part. It's waiting. It's not knowing how to get moving or which direction to go. It's not knowing what land will look like when you hit it. It's not being afraid of what you will find but confused about how you will get there. It is being alone in a vast sea, and either waiting for someone to come and tow you in or figuring out how to do it yourself. It's a lot different than being a leaf on the stream.
This is what my life feels like now. I can blame it on cancer and its aftermath. I can blame it on the stress and pressure from every side I feel so acutely that it pools upon my skin in bumps. I can blame it on loss and distrust and the feeling of being alone in the world. But the reality is that no matter the cause, it is a long journey of sailing back over these years that will take me to the place that I can call home.
*****************************************************************************
“And [he] sailed back over a year
and in and out of weeks
and through a day
and into the night of his very own room
where he found his supper waiting for him
and it was still hot”
― Maurice Sendak, Where the Wild Things Are
My mother used to remark that every time she sat down in a movie theater, she would fall asleep. These were in the post-Dad-dying days where her burdens were heavy and, I suspect, nights restless. We would load into the car during that hot Oklahoma summer and in the cool dark of the theater she'd drift off until one of us would gently nudge her as it was time to go.
In the darkness of the music auditorium I have a similar experience. Away from handheld devices and computers diverting my attention, from conversations and questions and things needing to be done, I let my mind drift and wander. I visualize my life in snapshots and pictures. I let the music seep in and replenish the dry landscape of my harried mind and heart. Within this space, I have learned to let go.
Tonight I spent a good long while with a blue-period painting projected on my mind. Eyes upon the back of a woman sitting in a small boat, the water is flat, the sky and the sea enjoined in one monotone color. An arial view shows no land. There is no wind for the sail. There is no obvious way north, south, east or west; no clear direction and nothing propelling the boat forward.
It's not a frightening scene. Just dead quiet glassy water, humidity so thick you can feel it in your throat, close. It's a scene that is wistful for a cool breeze and for the clouds to part. It's waiting. It's not knowing how to get moving or which direction to go. It's not knowing what land will look like when you hit it. It's not being afraid of what you will find but confused about how you will get there. It is being alone in a vast sea, and either waiting for someone to come and tow you in or figuring out how to do it yourself. It's a lot different than being a leaf on the stream.
This is what my life feels like now. I can blame it on cancer and its aftermath. I can blame it on the stress and pressure from every side I feel so acutely that it pools upon my skin in bumps. I can blame it on loss and distrust and the feeling of being alone in the world. But the reality is that no matter the cause, it is a long journey of sailing back over these years that will take me to the place that I can call home.
Sunday, October 14, 2012
Grief is a Sneaky Thief
Sluggish from the cold and cranky from not eating, I bolstered myself for the inevitable acres of ugly shoes I would find on the other side of the department store door. I was looking for shoes for a trip the next day, my least favorite past time when "shoes" meant boring, flat, uneven-pavement-appropriate foot coverings that also had to work with suits. Bah.
The ugliness of the shoes did not disappoint. Laps and laps around tables of tricked out clogs and pilgrim-buckle flats was proving to be fruitless and frustrating until I heard the sound of laughter coming from a section of chairs. I looked over to see a grey-haired woman in her mid-60s walking away in a pair of shoes, her daughter near me with a half-laughing, half-exasperated look on her face.
"She can be so difficult with these things," the daughter smiled. I looked up again to see this woman, so like my mom with her jeans, her silver-top short hair, her sweater and vest, sparking eyes and great smile taking another lap to test out her selection. My breath caught and a lump swelled in my throat. "Your mom reminds me of my mom, actually," I said. "My mom's been gone for two years. She was a handful too." It was all I could do not to add "Treasure these moments because you never know what is going to happen next."
The jealousy I felt for that daughter in that moment was completely overwhelming. I walked away, trying to fight back the tears and compose myself, all of the angry thoughts about my mom dying too early rushing into my mind and heart. I wanted to run out the door, leave so I could get rid of the visual as quickly as possible. Instead I circled back around and struck up a conversation.
True to my initial perception, this woman was every bit as spunky and fun as my own mom. We complained about the ugly shoes, talked about how people don't dress for work any more, giggled about how shoe shopping in such conditions nearly drove one to drink and agreed that a drink this early in the day would surely be fodder for the gossipy nature of our smallish town. And then, they picked up and walked out with gracious goodbyes, a twosome together on to their next stop.
It was, for a moment, a strange sort of contact high. In a parallel space, my brain kept saying "It's like I can be with my mom, but not really. This is like being with my mom just for a minute. Is this good, or is this bad?", both taking me out of the moment and drawing me deeper into it. I bought my ugly shoes and stumbled back out into the rain, a bit fogged as to what had just happened.
I sat with these mixed emotions all night, trying to talk myself through the roller coaster of feelings I was having. It was an unusual night, my family away and friends that I usually turn to not available. For the first time in a long time, I had to sit with it on my own and deal, just deal, with my feelings and sadness. I just had to be with it.
Grief is a tricky thing. Sometimes it's a rubber ball let off in a room, zinging and flying all around without any sense of continuum or trajectory. Sometimes it's a sneaky thief that catches you unawares and tries to take something from you. Most times, you have to fight the urge to run away from it, instead standing with pain borne of loss, but borne of good memories and deep longing. Standing with grief, leveling with it, exposing yourself to it is the journey of anyone who has suffered loss. It's the path to recovering from that suffering. It's the way to begin to heal and move forward. It's a bitch of a job.
I like to imagine that at some point in a department store in Oklahoma City many years ago, someone else had the experience I did yesterday with a woman and her three daughters and the laughter and love that showed through. I like to imagine that the woman and her daughter I met yesterday somehow knew that they made a difference in my afternoon. I like to imagine that we provide spaces for each other in this reconnecting to things we have lost along the way. I like to imagine my mom would have found a certain beauty in this story.
The ugliness of the shoes did not disappoint. Laps and laps around tables of tricked out clogs and pilgrim-buckle flats was proving to be fruitless and frustrating until I heard the sound of laughter coming from a section of chairs. I looked over to see a grey-haired woman in her mid-60s walking away in a pair of shoes, her daughter near me with a half-laughing, half-exasperated look on her face.
"She can be so difficult with these things," the daughter smiled. I looked up again to see this woman, so like my mom with her jeans, her silver-top short hair, her sweater and vest, sparking eyes and great smile taking another lap to test out her selection. My breath caught and a lump swelled in my throat. "Your mom reminds me of my mom, actually," I said. "My mom's been gone for two years. She was a handful too." It was all I could do not to add "Treasure these moments because you never know what is going to happen next."
The jealousy I felt for that daughter in that moment was completely overwhelming. I walked away, trying to fight back the tears and compose myself, all of the angry thoughts about my mom dying too early rushing into my mind and heart. I wanted to run out the door, leave so I could get rid of the visual as quickly as possible. Instead I circled back around and struck up a conversation.
True to my initial perception, this woman was every bit as spunky and fun as my own mom. We complained about the ugly shoes, talked about how people don't dress for work any more, giggled about how shoe shopping in such conditions nearly drove one to drink and agreed that a drink this early in the day would surely be fodder for the gossipy nature of our smallish town. And then, they picked up and walked out with gracious goodbyes, a twosome together on to their next stop.
It was, for a moment, a strange sort of contact high. In a parallel space, my brain kept saying "It's like I can be with my mom, but not really. This is like being with my mom just for a minute. Is this good, or is this bad?", both taking me out of the moment and drawing me deeper into it. I bought my ugly shoes and stumbled back out into the rain, a bit fogged as to what had just happened.
I sat with these mixed emotions all night, trying to talk myself through the roller coaster of feelings I was having. It was an unusual night, my family away and friends that I usually turn to not available. For the first time in a long time, I had to sit with it on my own and deal, just deal, with my feelings and sadness. I just had to be with it.
Grief is a tricky thing. Sometimes it's a rubber ball let off in a room, zinging and flying all around without any sense of continuum or trajectory. Sometimes it's a sneaky thief that catches you unawares and tries to take something from you. Most times, you have to fight the urge to run away from it, instead standing with pain borne of loss, but borne of good memories and deep longing. Standing with grief, leveling with it, exposing yourself to it is the journey of anyone who has suffered loss. It's the path to recovering from that suffering. It's the way to begin to heal and move forward. It's a bitch of a job.
I like to imagine that at some point in a department store in Oklahoma City many years ago, someone else had the experience I did yesterday with a woman and her three daughters and the laughter and love that showed through. I like to imagine that the woman and her daughter I met yesterday somehow knew that they made a difference in my afternoon. I like to imagine that we provide spaces for each other in this reconnecting to things we have lost along the way. I like to imagine my mom would have found a certain beauty in this story.
Friday, May 4, 2012
Carousel
Giselle always got this crazy cat third eye that would appear every time we gave her Lorazepam. She'd yowl and protest you shoving the shaven-down half of a itty bitty pill down her throat, but within 30 minutes would be zonked and ready to travel.
That memory made me smile a bit as I dug through the bathroom closet looking for the prescription that I had so many months ago. I used to take Atavan (Lorazepam) after I got the port inserted and would lie awake feeling the creepy sensation of the port going into my vein and grappling with my constant worry that it was somehow going to cause a clot. One Atavan and thirty minutes and I would forget about the port and wander off into sleep.
Tonight I found that trusty pill bottle with half of the scrip left, so thankful that my own distaste for being on prescription drugs keeps me from enjoying them enough to run out of them. I'm trying to corral my mind back in tonight, keeping it from repeating the anxious worry that's been swirling in my brain since I came home from New Orleans. "Is it going to stick this time?" my brain wonders and as I prod my breast for any sign of hardening. In the pit of my stomach, I think I know that the answer is "no", because I think that I know these things about myself and the way my body works.
So with that whisper to my nervous self, my brain goes into a visual overdrive of what life will be like. "If I lose my breasts," I think, "I'll leave my job and just work out all the time. I'll be in the best shape ever. I just won't have any breasts. It will be fine." And then, my hopeful self says, "Well, maybe in a few years they will come up with a surgery that works for me." and my nervous self laughs softly, pats my hand and reminds my hopeful self that we've been here before, that it's not the procedure, per se, but what my body does to it. And then my brain lurches into another scenario where I feel every bit of what this 14 months of procedures has done to my body, feeling I've been completely trapped in intervention after intervention until I just want to scream.
A picture of Truman-Show-esque carousel ride just popped into my mind. Round and round, garish lights and horrible music and the sickening up and down of hard uncomfortable horses set against a white sound stage. And then it's as though someone rips the needle from the record and everything stops, the only sound is the clicking of my heels as I walk for the door and open it to the bright sunlight. That is what I want to have happen right now. Really, honestly, truly. I want to somehow walk out of this sideshow of a life I have been given. I want everything to just go back to the way it was a year ago January, before any of this insanity started. I want my body back, I want my time back, I want my life in all of its complexities that I still need to figure out back. I don't want to need help. I don't want to be frustrated. I don't want to be sad. I don't want to be angry. I don't want to be what I see in the mirror these days.
So it won't be that. I will get through the next couple of weeks. The post-surgical depression/anxiety that I am feeling will subside as things straighten out, as I can move around better as the incisions heal, as I know if these breasts are going to stay or go. Life will even out. I know this. I hold on to this as fiercely as a child clutches a new treasured stone at the beach.
Thirty minutes has come and gone and I'm not sure if it's the drugs or the writing, but I think I should be able to sleep now. I'm not writing this to worry anybody. We've been here before, you know, and I appreciate that you are still here with me. It's just been a really, really long road.
P.S. I just looked back in this blog to find an old link and was completely surprised that this recent reconstructive redo was one day shy of the ONE YEAR anniversary of my mastectomy/reconstruction that started me on this path. I don't know whether to laugh or cry. A year and we are still walking.
That memory made me smile a bit as I dug through the bathroom closet looking for the prescription that I had so many months ago. I used to take Atavan (Lorazepam) after I got the port inserted and would lie awake feeling the creepy sensation of the port going into my vein and grappling with my constant worry that it was somehow going to cause a clot. One Atavan and thirty minutes and I would forget about the port and wander off into sleep.
Tonight I found that trusty pill bottle with half of the scrip left, so thankful that my own distaste for being on prescription drugs keeps me from enjoying them enough to run out of them. I'm trying to corral my mind back in tonight, keeping it from repeating the anxious worry that's been swirling in my brain since I came home from New Orleans. "Is it going to stick this time?" my brain wonders and as I prod my breast for any sign of hardening. In the pit of my stomach, I think I know that the answer is "no", because I think that I know these things about myself and the way my body works.
So with that whisper to my nervous self, my brain goes into a visual overdrive of what life will be like. "If I lose my breasts," I think, "I'll leave my job and just work out all the time. I'll be in the best shape ever. I just won't have any breasts. It will be fine." And then, my hopeful self says, "Well, maybe in a few years they will come up with a surgery that works for me." and my nervous self laughs softly, pats my hand and reminds my hopeful self that we've been here before, that it's not the procedure, per se, but what my body does to it. And then my brain lurches into another scenario where I feel every bit of what this 14 months of procedures has done to my body, feeling I've been completely trapped in intervention after intervention until I just want to scream.
A picture of Truman-Show-esque carousel ride just popped into my mind. Round and round, garish lights and horrible music and the sickening up and down of hard uncomfortable horses set against a white sound stage. And then it's as though someone rips the needle from the record and everything stops, the only sound is the clicking of my heels as I walk for the door and open it to the bright sunlight. That is what I want to have happen right now. Really, honestly, truly. I want to somehow walk out of this sideshow of a life I have been given. I want everything to just go back to the way it was a year ago January, before any of this insanity started. I want my body back, I want my time back, I want my life in all of its complexities that I still need to figure out back. I don't want to need help. I don't want to be frustrated. I don't want to be sad. I don't want to be angry. I don't want to be what I see in the mirror these days.
So it won't be that. I will get through the next couple of weeks. The post-surgical depression/anxiety that I am feeling will subside as things straighten out, as I can move around better as the incisions heal, as I know if these breasts are going to stay or go. Life will even out. I know this. I hold on to this as fiercely as a child clutches a new treasured stone at the beach.
Thirty minutes has come and gone and I'm not sure if it's the drugs or the writing, but I think I should be able to sleep now. I'm not writing this to worry anybody. We've been here before, you know, and I appreciate that you are still here with me. It's just been a really, really long road.
P.S. I just looked back in this blog to find an old link and was completely surprised that this recent reconstructive redo was one day shy of the ONE YEAR anniversary of my mastectomy/reconstruction that started me on this path. I don't know whether to laugh or cry. A year and we are still walking.
Friday, May 6, 2011
Reality post
I need to buck the hell up.
I've been sitting here for the past few days feeling sorry as shit for myself. My body aches, I've reached my 7-day limit on being sick, I've had allergies, I've been depressed as hell. Every morning Ava turns on the song Endless Night from the Lion King and I am awash in tears.
It's a slippery slope, this one. It's easy to creep around and be protective. It's close to the bone and frightening to feel so vulnerable.
So I have started thinking of things that I can and can't control/do and do not know in order to bring some discipline to my mind.
Here are the things I don't know:
1) If I will ever feel normal in my own body again
2) If cancer will come back and if I will have to deal with this again in another form
3) How things will be days, weeks, months from now
Here are the things that I do know:
1) I have an amazing husband who somehow is powering through this time
2) My kids are the most sensitive, wonderful children I could ever hope for
3) I am lucky to count my sisters as my friends and my friends as life lines that keep me moving and laughing through otherwise deep waters
4) The sun does shine in Michigan
So, that's just today. Tomorrow may be different. Who knows what next week will be, or a month from now, or next year. But it's today. And the sun is shining. And I am going to put on some sunscreen and sit outside.
Note: I was going to go sit outside, until I realized that my over-zealous (although still amazing) gardner-husband has spread some sort of fish blood emulsion all over the front beds. So, instead I am going to read Tina Fey's book and look sit in the sunlight indoors...away from the hell smell.
I've been sitting here for the past few days feeling sorry as shit for myself. My body aches, I've reached my 7-day limit on being sick, I've had allergies, I've been depressed as hell. Every morning Ava turns on the song Endless Night from the Lion King and I am awash in tears.
It's a slippery slope, this one. It's easy to creep around and be protective. It's close to the bone and frightening to feel so vulnerable.
So I have started thinking of things that I can and can't control/do and do not know in order to bring some discipline to my mind.
Here are the things I don't know:
1) If I will ever feel normal in my own body again
2) If cancer will come back and if I will have to deal with this again in another form
3) How things will be days, weeks, months from now
Here are the things that I do know:
1) I have an amazing husband who somehow is powering through this time
2) My kids are the most sensitive, wonderful children I could ever hope for
3) I am lucky to count my sisters as my friends and my friends as life lines that keep me moving and laughing through otherwise deep waters
4) The sun does shine in Michigan
So, that's just today. Tomorrow may be different. Who knows what next week will be, or a month from now, or next year. But it's today. And the sun is shining. And I am going to put on some sunscreen and sit outside.
Note: I was going to go sit outside, until I realized that my over-zealous (although still amazing) gardner-husband has spread some sort of fish blood emulsion all over the front beds. So, instead I am going to read Tina Fey's book and look sit in the sunlight indoors...away from the hell smell.
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