Love makes space for everyone’s happiness.

This is a piece I wrote during my #lentinseptember days.
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I have struggled immensely over the years to come to terms with my mother’s decision not to marry again after my dad died. She not only didn’t remarry, but also didn’t date anyone. For years when I was a child, I thought this was because she loved my father so much that she couldn’t bring herself to be with someone else, that this was the essence of true and abiding love, a love that I should search for as an adult. As I grew older, I began to understand how complex having your partner die can be. I think my mother was afraid to extend herself again, afraid of losing someone again (as her mother had), afraid of rejection, afraid of what life like might be like on the other side of this immense fear. And, in addition to this incapacitating fear (and this has been true for my two friends who have been widowed), some people would not let my father die. People shared their condolences on an annual basis, remembered the anniversary of his death, sent her cards on his birthday. She was, in their minds, married to my father forever and therefore, in some small way, in her mind she was beholden to that narrative. My best friend brought this home for me when she told me about her own experience of having to leave friendships because all her friends ever wanted to talk about was her husband and how much they missed him and wished he were there. She had ceased to be a young and vibrant spirit in their eyes and was, instead, the memory of husband she’d lost. I think this, in some ways, is because people want to believe in endless love, true love, love that lasts a lifetime and beyond. That they themselves are worthy of that undying love, that they themselves may be loved in that way.

And, in reality, that love may exist and it may never die, but that does not mean that life does not move forward into different narratives. Nothing replaces that love, but beauty and vibrancy and life get added in the form of new love. It is impossible to unlearn anything in our brain, we only add new learning and experiences to it. And so goes our heart.

I remember when my friend and I sat at the coffee shop in those fragile days after her husband’s funeral, discussing what life was like now and what her future may hold. “What if I wanted to be buried with him and I get married to someone else?” she said, her tiny, grief-wasted frame leaning across the table. “What if he was my one true love? How will that next person feel?” I remember telling her that I thought this was a normal part of grief, and that her life and the end of her story were hers to write, and that story included resting with whomever she wanted to rest with, that the next man in her life would understand. People who love you have a wide berth of forgiveness of emotion, nostalgia. They understand love and loss, or they do if you’ve attracted the right human. They take what has happened as part of your living story and love all parts of you. 

From my own experience, I know there is a tremendous weight on a child whose parent does not move forward in her/his life. It creates unrealistic expectations of love and commitment that likely will be unmatched with her/his future partners. It also makes that child feel guilty at the sacrifice that the parent offered, should that child feel less compelled to be so completely self-sacrificing as a parent his or herself. In some ways, it’s a perpetuation of guilt and shame. My mom sacrificed so much by doing X, I should be able to... It’s always felt hard and raw and not reciprocal to me. It feels like too much that’s been given, a sacrifice too great. It’s fear and avoidance and nakedness cloaked in love, but it’s not love alone. Love makes space for everyone’s happiness.

Emerging Fullness, in the Deluge

MR. O'DONOHUE*: Well, I think that the threshold, if you go back to the etymology of the word "threshold," it comes from "threshing," which is to separate the grain from the husk. So the threshold, in a way, is a place where you move into more critical and challenging and worthy fullness. And I think there are huge thresholds in every life. I mean, I think, you know that, for instance, I'd like to give a very simple example of it is, that if you are in the middle of your life in a busy evening, 50 things to do and you get a phone call that somebody you love is suddenly dying. Takes 10 seconds to communicate that information, but when you put the phone down, you are already standing in a different world. Because suddenly everything that seems so important before is all gone and now you are thinking of this. So the given world that we think is there and the solid ground we are on is so tentative. And I think a threshold is a line which separates two territories of spirit, and I think that very often how we cross is the key thing.

MS. TIPPETT: And where is — where is beauty in that?

MR. O'DONOHUE: Where beauty is — I think is beauty — beauty isn't all about just nice, loveliness like. Beauty is about more rounded substantial becoming. And I think when we cross a new threshold that if we cross worthily, what we do is we heal the patterns of repetition that were in us that had us caught somewhere. And in our crossing then we cross on to new ground where we just don't repeat what we've been through in the last place we were. So I think beauty in that sense is about an emerging fullness, a greater sense of grace and elegance, a deeper sense of depth, and also a kind of homecoming for the enriched memory of your unfolding life.
* http://www.onbeing.org/program/inner-landscape-beauty/transcript/1125

Today I walked back through church doors that I hadn't crossed in ten years, my return prompted by something John O'Donohue said about community and christianity and this great understanding of beauty and thresholds and moving into "more critical and challenging and worthy of fullness." The decision to stop attending church was as frivolous as my starting: I began going to the Unitarian church when I was 24, having finally found a spiritual home and I left because we moved to a new city and the feeling of loss was too deep, too disconnected upon return for me to feel comfortable. In short, because I had lost I denied the very thing that would have likely helped me to heal, connect, and grow. I've been journeying around in an array of seeking in the past year, all sorts of hooey and loveliness and unknown that I myself don't know if I believe, but I've been looking for a map, hanging my heart on trying to divine how things will unfold, reaching back to work through hard things and looking forward to predict the future. Who knows if any of it is true, but it's something to think through and that in itself is valuable.

These days, the season of thresholds feels like it's coming to an end, after years of disarray and change and heartbreaking loss and difficulty, it feels like life is settling out. And yet, it's not. We fool ourselves with that thinking of calm, that chaos isn't balling itself up for another go at our lives. It's instructive that way, the call in the wee hours that a friend needs our love or that someone is leaving our life or that we ourselves just find us dragged behind the black dog of depression for even one day, knees skinned and tender, grown unused to the sudden tumble. 

But what I've learned instead is not to fight the chaos and the change and the strife and the difficulty, but to live in the experience of it. When David was about to be born, I took a number of hypno-birthing classes so that I could hopefully remove myself from the pain of his delivery by envisioning a happier place somewhere sacred and beyond (with chocolate babka, but that's another story). But the truth was that I couldn't remove myself from where my body was, that only by reaching into the intensity and depth of that physical pain could I get through it. 

And so I'm beginning to understand that that's what all of this is about, the transitions and waiting for life to calm down and even out and not feel like I'm deflecting lasers with my light saber. The truth is being in it, with whoever needs it, with myself clear about my own needs, with a sense of community that is big and robust and purposeful, with love and gratitude and sadness and the whole gamut of it all, is the beauty of life. Alive and giving, alive and conscious, alive and intentional. But alive and in it and not afraid and not tired and not waiting for life to begin anew, easier and more simple. 

Because we are complex creatures living in a complex world. If you are going to engage, it gets messy. Put your boots on and get to work. Meet these times worthily, so as O'Donohue notes, "what we do is we heal the patterns of repetition that were in us that had us caught somewhere. And in our crossing then we cross on to new ground where we just don't repeat what we've been through in the last place we were. So I think beauty in that sense is about an emerging fullness, a greater sense of grace and elegance, a deeper sense of depth, and also a kind of homecoming for the enriched memory of your unfolding life."

  

Where it sits

My bit of my mother's remains are nestled between a thick stone slab and the outer box of my brother's coffin, slipped there in a smooth wooden box by a persistent funeral director and a kind person at the Archdiocese who knew that spot, one spot down, was meant for her and not her 15 year old son whose life ended too early. Mom had always joked that she wanted to be with Dad and Hunter in the end. "Just sprinkle me around the edges," she said. "Nobody will ever know."

But she's there with a banded plaque that spans the marble, a three-person plot made out of the two. She thought about the options before she died, knowing she would be cremated, noting that our family plot was still an option in her small hometown in Kansas, talking about Africa and the ranch and of Dad and Hunter. So we divided her ashes, each taking a small part of her great legacy, to trail her earthly being back to the places she loved.

It's a curious thing to think about where your physical being will be after you die. Our people have always been buried with family, generations of people in the same acreage in small towns on the plains, still married through early deaths and lost children and all manner of combinations of life that came next. You were with your people, that man you married or the parents you lived with or the generations of people who stayed within the same range of life that makes a family a community. You can trace that lineage through the fading marble, lives made visible and marked and remembered.

I've never given much thought to where I want my remains to be after I've gone, never had that discussion with anyone outside of my then-husband. In those days of early marriage, I'd always assumed that we'd be together somewhere, ashes mixed, such a romantic notion. Cremation offers you that, a pause button, a hilarious pause button in some ways, allowing you to believe that if you are the one and only, there is life ever after together somewhere.

But life circumstances change, and change radically, and a new life requires you to consider these things anew. And the question of permanence keeps coming to me, of marking space and time, of having a sacred spot for your children to visit if they need to. A place they never go but can if they want to. And this notion of dividing suddenly feels weird, like the human form is elastic, stretched to the corners of the earth.

Even as I write this, my body craves the weight of place, one place, consolidated in its being. Permanence. The intimacy of ritual. The process of saying goodbye. The feeling of knowing where someone is. Not having a plan makes me feel unmoored and anxious.

Where will I go? What is special to me? What will be most important to my kids, most of all? Where is my soul most in touch with this earth? When I think about that one question, a few images appear: The sunrise over the fields at headquarters in Oklahoma, the evening sky in Santa Fe, driving into downtown Seattle on a sunny day, the tiles of the Rome train station, the south China sea at sunrise from the deck of a ship...it suddenly feels as easy for my kids to travel to these places and snap pictures as to fling the grainy remains of this body into any space. I'm adding this to the list of things to leave behind, the ideas and thoughts and what it would mean to remain upon this earth long after I'm gone.

1,640 miles away, I can imagine sitting in the cool marble room tracing the name of my sweet brother who came into this life 40 years ago today. That's where this sits.

Make Yourself Yours

As I shuffled boxes around from room to room yesterday, it dawned on me suddenly that everything I own is finally consolidated in one space. The relics of my highschool and college years and those weird years in between owning my own home have been brought from my mother's house, my grandmother's pieces divided, the selection of things that I took from married life sit boxed and wrapped in my new home.

It's all here. All of my history and present in one place.

And as I've rifled through some of these boxes, I've pulled out old letters from friends, pictures of my much younger self, snapshots of periods of my life when I was somewhat lost and somewhat found. There are the chatty "how are things at ..." letters from my mother that wait for me, along with a cache of chosen objects of my father's that will find a place in my home.

The idea of working through these boxes is remarkably unnerving, observing the hard and the good, remembering what came before and what contributed to who I am now. Meeting that girl at 9 and 13 and 18 and 25 and 30 and loving her, all of her. It's messy to uncover a lot of things I've left boxed away for years, but it feels like something that is part of being the girl I love at 44.

Today Parker Palmer wrote a beautiful piece on loving all of ourselves, inspired by this quote by Florida Scott-Maxwell:

You need only claim the events of your life to make yourself yours. When you truly possess all you have been and done...you are fierce with reality.

Then he goes on to add this:

Today, at age 76, I know Scott-Maxwell got it right: there are no short-cuts to wholeness. The only way to become whole is to put our arms lovingly around everything we’ve shown ourselves to be: self-serving and generous, spiteful and compassionate, cowardly and courageous, treacherous and trustworthy. We must be able to say to ourselves and to the world at large, “I am all of the above.” If we can’t embrace the whole of who we are — embrace it with transformative love — we’ll imprison the creative energies hidden in our own shadows and flee from the world’s complex mix of shadow and light.

I'm going to spend some time with this today, thinking about how fierce with reality I can be. I feel like I am a good stretch there in my present life. Maybe digging back into my past a bit will make me even more myself, uniquely mine. 

Parker Palmer's piece is on the OnBeing site. Worth a read: http://www.onbeing.org/blog/fierce-with-reality-living-and-loving-well-to-the-end/7729

Winnowing

Somehow this is not how you envisioned it, midday grey skies coaxing through the windows that you notice are in need of polishing before the people come to look at what is there. You envisioned bourbon in glasses and smoke and arms fisted up into clenched hands wrestling over who gets what. But it's not that. It's a Monday and you are starting with the bigger things when your partner of so many years lays it out for you. There isn't a lot there, honestly. Extracting the family pieces that you've either dragged with you or recently dragged in, there's not a lot there worth keeping. Old mattress 10 years on that may need replacing (that saw both of your children home), bunk beds the kids no longer want, too many items from IKEA to warrant a move across half of the nation. Save a few pieces of furniture, all of the accumulated knick knacks and a heavy lift in the kitchen, glassware and dishes, there simply is not much there. Easier to pitch it, give it away, parse it out and buy anew than to spend what it would take to bring it along.

You are not ready for the gut-punch that this brings, the sudden thought of this person you've been with for so long starting a life with barely a trace of his old, your history's imprint erased from the smooth arms of the chair, wiped clean off of the glasses, not nuanced in the myriad of future choices he would make about his accommodated life. But it's not the you being erased that is the gut-punch, it's the history, it's the together, the starting over and moving on.

And for the next few hours, you ruminate over what investment means in a marriage. What not having a lot in common to divide up means. You want to lift this metaphor into the narrative of your marriage, to use it as a tool to make your case. It's proof, you think, because the bigger truth is your heart is sore, because accumulating/not accumulating objects feels like it should mean something, because after 14 years you expected more to be there, because you can't quite erase the image of your partner's back entering a home, not your home, to start anew.

You would be foolish to leave your thinking there, so you don't. You remember hours in the garden, great meals in the kitchen, small people at soccer games and school board meetings and graduate school. You remember moving and packing and unpacking and fishing trips and the long stretch of time that this house you are leaving has afforded you during beautiful summer weather and magnificent fall leaves.  Fourteen years, not measured in big things you bought, slippery to hold onto save for the two bright and amazing beings the world will delight to receive someday. Slippery to hold on to save the small objects from faraway places that you hope his future partner won't ask to remove, the pieces that were too beautiful to let go of, the pictures you stack to split up, the wedding invitations you set aside for the kids, the bags and boxes of life moved through that you haul to the curb. It's all there for the viewing, all of the miles and years of hopeful emotions that you relive in each pile, your heart too soft for this work of winnowing what's worth keeping and what's worth leaving behind.

On Letting Go

The couch was a good place, close enough that I could hear what was going on in my mother's room, far enough away to sit or sleep, to think and process, to rattle around in my brain looking for answers. My mother was a few days away from dying. This time was marked by ups and downs in her mental state, her physical body crumbling underneath her as she rested in the hospital bed we'd had brought in a couple of weeks before. She'd be alert one minute and wanting to go out to sit in the sun, the next completely out of it. "She's not ready to let go yet," the short, red-haired night nurse whispered to my sisters and me. I can imagine my mom, at this exact moment of whispering, popping her head up and demanding to know what we were being so secretive about. It was an insane ride, those days.

Although we had had many people die in our lives, this was our first rodeo with terminal illness. My sisters and I would look at each other with the sad and incredulous faces of people who desperately needed the situation at hand to come to a close, while at the same time wanting to roll back time...back, back, back...to a safe space where all of everything just went away.

On one of those nights, and in a desperate attempt to find some help, we downloaded the Tibetan Book of Living and Dying on my ipad, scanning its pages in the semi-dark for a way to help my mom let go, this woman who had weathered so much in her lifetime, who fought and stood strong throughout our lives. It was there that we read a passage that would change our perspective on death and dying, what leaving means. In dying you lose everything you have ever known. You lose the touch of loved ones, the smell of your favorite meal, the soft fur of your beloved animal, the sunshine on your face, your favorite vista. Even if you are religious or ready to die, facing that loss is tremendous and overwhelming in a way that we often don't think about. It's not the not being there, it's the anticipatory longing for the parts that you love but have to leave behind.

My friend and I were talking about the similarities between divorce and death, how losing someone in death is almost easier, that bereavement is different when what you have lost is walking around in the world. And much of this same story line holds true for divorce. You miss your former life even as your new life is emerging: the camaraderie and closeness you once felt with your partner, the regularity of someone's habits, the well-worn teamwork of holiday packing, the gathering of extended family that you love with all your heart. It is stepping away from this certainty, the compilation of so many days, that provokes unexpected stabbiness as you rise from anxious sleep,  haul the bags out to the car, worry that you have forgotten something, check the tickets twice. It's cutting an entirely uncertain path, thrusting yourself in a future you cannot see and don't entirely trust. In leaving you lose everything you have ever known, even if you know in your mind it's the right thing to do, the heart a few paces behind.

In Ordinary Time

For my lovely sister, Sara, who teaches me these things as she's learning them herself. I love you.

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Earbuds in place, even though there was nobody in the house, my body felt the urge to get outside and walk and listen, my limbs couped up recovering from a nasty stabbing pain in my heel that made me slow to a snail's pace for a week. That pain, the most frustrating thing in a moment where I needed to walk it out, exhale breath, give my brain a chance to consolidate it's drive, said "slow down". It actually said "slow down, motherfucka, or you are going to reap 10x what you are sowing here." Slow down, sit with it, be in it. There is no avoiding it. Sit down. Heal.

Leaves falling, air crisp-to-lovely, I wove my way around my new section of my new old neighborhood, circling close to home lest the heel rebel, returning waves to people I do not know. It's bizarre to be out in the middle of the day, my normal schedule shot through with extra time, my head uncomfortable and loose in the luxury of making my own hours. I don't like this looseness, this working when I want or need to, this feeling of ambiguity. But ambiguity surrounds me everywhere, all of the conventional things in my life having turned 180, my life in the blue sky. Ambiguity, looseness, the lack of structure, the lack of a task list, no horizon or compass is like warm water, not so much like a bath but of floating. I have always been a girl with a vision and a mission to boot. Now is the preparation time for that uncovering, in these next few months. Waiting to sense the clicking in, listening for that tug at the gut, that inner compass.

Slow down, sit with it, be in it. There is no avoiding it. Sit down. Heal.

Leaves falling, air crisp-to-lovely, listening to these words.

The Gate

BY MARIE HOWE

I had no idea that the gate I would step through

to finally enter this world

would be the space my brother's body made. He was

a little taller than me: a young man

but grown, himself by then,

done at twenty-eight, having folded every sheet,

rinsed every glass he would ever rinse under the cold

and running water.

This is what you have been waiting for, he used to say to me.

And I'd say, What?

And he'd say, This—holding up my cheese and mustard sandwich.

And I'd say, What?

And he'd say, This, sort of looking around.

Little That is Noble

My mother's biggest fear was going old and senile, of losing her marbles before her body shut down. She would, from time to time, remark that she wished there was a bottle of that "special Tylenol" in the top of the cupboard, referring to the Tylenol cynaide scandal of the early '80s, just in case she started to slide into dementia. Those jokes were kind of half jokes / half wistful thinking living in a state where any sort of assisted suicide would be seen as punishable to the greatest extent of the law.

My mother, brave and strong and tough as nails, weathered some of the greatest heartaches life had to dole out, the final coup being a diagnosis of stage IV lung cancer one week shy of her retirement. She dug in, for us, and tried to stave off the cancer that would inevitably kill her. She tried, beyond probably her own desires, to stick around as long as possible.

And the end was a shitty one. The entire process, honestly, was a shitty one of doctor's appointments and side effects and loss and not knowing, really, when to say "when". She did it for us, true to her form of putting her own desires last, loving the people who needed the comfort of a few more months or days more than her own need for peace.

We talked through the "special Tylenol" options, downloading Final Exit only to discover that the options were to put her physician friends in professional peril or die of suffocation, her worst nightmare. I remember sitting on the ottoman of the big chair where she spent most of her time, walking through the options with my sisters, her shaking her head at each one. That was about the time when we decided hospice was the best option and things went downhill on icy skates.

In my mind, there is little that is noble about the way we treat the dying in this country. There is little noble about asking someone to suffer a horrible end or to be drugged nearly unconscious until her/his body fails. There is always the question of when to say goodbye, because there is always false hope. There is always the question of what to do, how to be, what to say, who to involve. I brought David and Ava in to say goodbye to my mother in the final days of her life. Ava clung to her father's neck crying "That's not my grandma! That's not my grandma!" while David buried his head in my waist. I don't know that I can forgive myself for that failure as a parent, for giving them that fearful last look at someone who loved them so deeply, who was hilarious and full of energy and love all of their lives. Instead, my mother was a shadow of herself, incoherent and frightening. 

What a beautiful thing it would have been to have had her pass on her own terms, our small family with her, her having said her goodbyes in her own way. She could have kissed and hugged all of her grandchildren, she could have had a final drink with her sons in law, she could have given each of us girls a special kiss on the cheek and held our hands as she did in quiet moments. Yes, that night would have been one of the hardest in all of our lives, but she would have gone out strong. She would have been herself. For those of you who knew my mom, you know what I am talking about. On her own terms, just like she lived her life.

I watched this video from this beautiful young woman who is now living in Oregon so she can end her life with dignity, vibrant and true. People faced with a terminal illness want and deserve a choice in the matter of how they live out their final days. I can't say this much better than it's described in the video, but I honor her choice as it may some day be my own. 

Grasping

My chest felt tight and unusually heavy as we swung out of Panera, coffees in hand, to make the 40 minute drive from Oklahoma City to my childhood home. This was the trip home that ended things, most things left being sold, my mother's house contracted for sale, the end of my time of having a place to land should I need it. This all ended long ago with my mother's death and our inevitable dividing of things and the eventual acknowledgement that our childhood home would be bundled up for someone else to own.

But it's been a tender couple of days. I walk past all of the tables in my mother's house that are laden with memories in the form of glass and silver and ceramic and oil paint and I feel a tug, a grasping for these items that remind me of my grandmother's home or of some piece of family history that I'm not quite ready to let go. I suddenly think that I haven't taken enough, that my parsimonious view when we were dividing things was short-sighted, that now I need these things to fill up a certain void left by dividing and new space and the time when my own children might want something of their own. I have a moment when I believe that I have bankrupted their future with a few fickle objects, which is total bullshit because these things mean nothing to them now and will mean nothing to them in the future because they don't know the people for whom these pieces had value. Still, I feel the tug and want and I sit in these feelings for a moment just letting them come and go, come and go.

The most interesting feeling that I am having is the feeling of grasping at something, fine threads of memory that are silken to the touch but so fine that they are hard to feel between the calloused fingers of my memory. I pick up my grandmother's wrecked suitcase, I take my dad's toy monkey, I find an electric razor that may contain DNA that would help me unlock who I am through where my dad came from. This all lands for me at a remarkable juncture in my life. I am losing the emotional security of my childhood home just as I have moved into a new place of my own to live. I am packing up a lifetime of memories just as I am launching into a new sphere of work. Never have I been in such a transitional space in my life, all by choice, all completely without a concrete plan or emotional safety net.

A strong vision or the predictive power of decision trees have been my family's way of managing through some of the shittier events in life. Have a vision, you'll know what to aim for. Map out the predictable outcomes, you won't be surprised when the worst outcome arrives at your door. There is comfort in knowing what is going to happen and in a family that has had such wildly unpredictable loss, it's been a saving grace.

But wrapping up pieces of your life and closing the door on spaces that house your memories is terrifying. It means closing off the one thing that you knew you could come back to, no matter what. It also means that sometimes you just have to sit without a vision for the future, that sometimes you have to just be in it. And you think back across those people whose things you touch: remembering what a kind woman your grandmother was, or what a fiercely strong woman your mother was, or what a generous and loving man your dad was, or how you look back over your family history and realize that you come from perserverant and courageous stock.

And the grasping slowly subsides and is replaced by appreciation. And you muster your own courage and think about working without much of a net. And you can let go, slowly, and move forward, slowly. And so be it. Amen.

Gravity pulls us back

My mother and I had a sticky relationship. Two people could not have been more different in many ways, our political beliefs unbending, our ways of arguing about things loud and confrontational. This was years in the making, journeying through high school and college and beyond up until the weeks preceding her death when the soft reality of a short time gave us the space to not so much talk things through, but just to be attentive to the love that we had for each other, the love that underwrote all these things.

People that know about my hard relationship with my mom always wonder, sometimes aloud, sometimes with their eyes, about how we wrapped things up. I shuffle my feet a bit, uncomfortable with the question that implies what it does, that we wasted many years in disharmony only to be robbed of a future together.

But in these past few years that my mother has been gone, I have realized that our relationship was what it was and would have continued to be so until something catastrophic happened that would have changed everything. And then likely changed nothing.

Because behavior in relationships is incredibly difficult to change. The gravity of the well-worn path pulls us back to what we know and are accustomed to, even if it's not what we want in our heart of hearts. That pattern may be the inability to admit that we are wrong or the hurt at another freezing us out. It may be the lack of courage to have hard conversations, to say that we are sorry, operate on a different level and in a different behavior pattern than we had before. But it's just really hard. And it may not mean that we don't love the other person, it may mean that we just don't have the capacity to make that change. Changing behavior in relationships takes time and near constant attention. It takes intention and tending. False starts and failures chip away at the surface. Sometimes it feels safer not to even start. Sometimes the disappointment feels like more than we can bear.

And you can live the rest of your life sick to your stomach that this never happened, riddled with guilt that you squandered your time with something so precious as your mother's time in your life. You can let that eat away at you, blame yourself, wonder what you could have done. Or you can realize, as so many relationships in life, that it was what it was, mine the time that you had for the good, push past the regrets and move forward. You can take this realization into your relationships that are alive today, have expectations for people and for yourself, live according to what you need and how you need to be loved and to recognize your own role in how that all works out. Because that is what she would have wanted, honestly. I think she'd appreciate that most.

A shot at redemption

T-10 days until I board a plane for Miami, dragging my pale skin and winter-worn smile to bask in the light of warm weather and friendship. This is no ordinary trip, but a reunion tour with one of my oldest and most important friends. Yes, this is the friend of my heart that I haven't seen or spoken to in years. Yes, we have been in contact.

In weird ways, it's as though things never changed, that the five years we spent out of each other's lives simply erased when we met at the glass door of her apartment building in Seattle. All of the sadness, hurt, bewilderment and anger that I think we both felt got crowded out by a feeling of coming home. She looks the same, has more gorgeous children, her sweet and hilarious husband is the wonderful guy I was friends with for years. We sat and drank mimosas and talked for hours before they packed up to go be Seattle's 12th man.

And this has all made me realize that I hate things that are unfinished. I used to think that the best/worst thing I could do at the end of a friendship or relationship was just to simply remove myself from the other person's world. But the truth is that it's painful, these unfinished things. It's harder to lose someone to living than to dying. Bereavement is different when what you have lost is walking around in the world.

The hardest thing to tease out is what keeps you from taking the plunge of reconnecting. Mostly it's pride, I think. At least that's what kept me from my friend for years. Pride and not wanting to be the first to extend the olive branch. That and the very real likelihood that things had changed so radically that it would never be the same. Or, like in so many other situations, it can't or shouldn't be the same. It's something impossible to know. It's only by making yourself vulnerable and by understanding what you are trying to resolve in your own heart that you will get to what you need.

Sunshine, cuban food, so many memories at the ready. Wish us luck.

Each for what they are

“Sometimes you meet someone, and it’s so clear that the two of you, on some level belong together. As lovers, or as friends, or as family, or as something entirely different. You just work, whether you understand one another or you’re in love or you’re partners in crime. You meet these people throughout your life, out of nowhere, under the strangest circumstances, and they help you feel alive. I don’t know if that makes me believe in coincidence, or fate, or sheer blind luck, but it definitely makes me believe in something.”— unknown


I have a fool's understanding of the beginning of the Universe, my untutored lens on the nature of its existence peppered with romantic ideas about particles and their attraction. But I love my ignorance, as it allows me to believe what I believe to be the electricity of deep connection, particles from the beginning of time reconnecting, people finding in another something elemental, fundamental, paired, true. It's a coming together of things long ago separated. It's attraction that is undeniable, electrifying and real. 

There is little in the world that matches the feeling of finding belonging in another, and little that matches the exhilaration of allowing yourself to open up to make that connection of deep friendship. This, for me, has happened with only a handful of people in my life and, as my life has progressed, I've grown less available to that possibility. I've been less willing to put myself out there, more afraid of investigating a connection to a new friend that may not fit and to have to back away, awkwardly, from relationships that aren't meant to be. There is a fitting to intimate friendships, as if your heart is made more whole upon connection and diminished in multiples upon loss. If you let it, the losses cause your heart to calcify; to look with a prejudiced eye at the attempts of others; to resist your own awesomely joyful and open nature; to tamp it down, lock it up, seal it off.

But the truth is that they are there, these connections well-worn and those not yet hatched, even if you try to keep yourself from them. Sometimes they last a lifetime or two, sometimes they intuit when you need them, sometimes they are moments in your life stitched together just for the moments that they are. You leave the ones that don't work out behind and relish the ones that stay. You chip away at the calcification and warm up the veins. You recognize each for what they are and for what they bring to your life. And you are grateful.

Frank. True. Honest. Real.

I wrote this post about a month or so ago, right on the heels of the dream I described. In that time I had begun to believe that the things I was writing here were too goddamn depressing, that there was no joy in anything I had to say, that people didn't want to read shit that made them cry.

Which lead to me not posting. Which meant that I wasn't being true to myself.

And then I got an email from my friend Lara last night, a long-ago woman with whom I shared a voyage around the world that will forever be imprinted on my mind. Lara is a kick-ass woman and kicked me in the ass to post again. Because Lara is not afraid of scary things. She's not one to need to mark of sunshine and optimism on everything. She just deals with things as they are. At least this is what I remember of her,  and loved about her, those many years ago.

So here we go again. Some things not so lovely, some things will be. It is what it is.
*********************************************************************************


Every once in awhile, there is a dream so vivid and real that I can't erase it from my eyes. Stark-still morning leaves me reliving the flashes and images that the soup of my brain has created the night before: some delicious and gorgeous and sensual and beautiful; others deep and lasting and disturbing and filled with resonant worry. Last night was one of those nights, delivering to me the dream that I've pushed off and aside for the past three years.

I can remember the colors in the dream, deep sapphire blue, lime-emerald green, white...all outlined in a contrasted black...and the incredible realness of what was going on. Frank. True. Honest. Real. Sitting in this dream, watching it unfold, participating in the scene, I believed that it was really happening.

That's because it can. And might. Which is what I thought of in my dappled-sunlight morning, swaddled deep in the sheets, unwilling to peek open to the new day.

It was the first dream I've ever had about getting cancer again, a recurrence which is pretty much a death sentence in the triple-negative world. See, I've never checked the stats, never typed "likelihood of survival after recurrence triple negative breast cancer" into the google jackpot to learn about my fate. My sister mentioned it once, the likelihood that I wouldn't survive another bout, but I plugged my ears and danced around until that voice in my head was gone.

But this dream was the real deal, it was sitting in the hospital getting the news, it was the reality that I was going to die, not a question of if, but when. Fuck. So real, so very real that I did type in those words and my sister was right. Likelihood of recurrence? Much, much higher than other hormone-receptive breast cancers. Survival rate after recurrence? 10%. Survival time? Average of nine months. Nine. Months.

I can't begin to understand what it means to die from breast cancer. My mind goes into overdrive trying to picture it in my head, what it would look like and comparing it to my mother's death from lung cancer. What happens? How do you die? What happens to your body? Who are you in that space? And in nine months? Nine months...on average?

I've lived the past two years in a daze, half denying that I ever had breast cancer, half denying that it can or will come back. It's comfortable, this denial, until you are lying in your warm bed completely awash in the reality that you very well may. fucking. die.

Die.

That something fundamental has happened in your life that threatens your existence in a way that you can't resolve. That you may be that life cut short that people cluck their tongues and shake their heads about. That all of your bravado and feeling good and pushing past the looks of people who know your story may be total bullshit because you may get this again and have to make decisions that are horrible all to extend your life by months...months, not years.

I suspect this reality check is something that every woman who gets breast cancer goes through. I know friends who have had recurrences who are there and are winning. I know few people who have died from this disease. But I have watched my friends and loved ones waste away from cancer. I have watched the bizarre deceleration and crippling otherness of an otherwise vibrant life.

Honestly, this reality is too much for me to handle. It's bankrupt. It's the end of the road. It's the edge of the universe. I can't wrap my head about what it would mean. And I want to believe it won't happen to me. But I'm not that arrogant and I am just that pessimistic.

So how do you live when that veil has been lifted? Does it change anything? Is it just roulette? Isn't there some huge life revelation that I am supposed to get from "holy fuck, I really may die?"

All I can keep with me is the blue and green of the scene, of the movement of people through the film in my brain, of the feeling of reckoning that stayed with me in the dream and beyond.

Final. It is what it is. No way around it. Real.

I wish there was some big pledge at the end of this post, something that would tell everyone that this was going to be ALL RIGHT and that things will be fine. But I am just going to sit with this reality for a bit because I need to, it's been too long that I've pushed it away.

circuitous routes

Steering through the small streets, squinting to remember the color and shape of houses I had seen just a week before, I used the Force to find my way back to the little white bungalow, perched in tree-lined shade on streets ordinal in number and alphabetical in line.

Ten days earlier I had arrived in Portland, skinny as an abandoned cat, grief-stricken, bereft and sad, newly repatriated after a dismal end of a romance over 9,500 miles away. I had come to take shelter in the warm home and friendship of my best friend and her husband, to stay a few days and renew, be with people that knew me best. Now with as much as I could cram into my car, I was heading back to start a new life.

I could fill up a page with words describe my friend: hilarious, brilliant, daring, feisty, creative, sharp as a whip, mischievous, unpredicatable, predictable. Equal parts beguiler and revolutionary, she had a personality that drew you in and held you fascinated. And, damn, was she funny.

We had a history of weaving in and out of each other's lives, taking long pauses after angry words, always reconnecting to be thick as thieves once again. Our friendship spanned decades, growing from the tumult of high school, through moves and loves and heartache and distance to new marriages, children and the fine crackling of expectations that accompanies a newly minted life. The many things that have shaped my life since that fateful decision to move to Portland (my husband, my career, Seattle) all hold her mark.

In short, I loved this friend. She was my constant, a phone call twice a day habit that I had grown both to depend on and to appreciate. Ours was one of the most important relationships of my life, not a girl crush but a deep and connected friendship. She was a taproot that held me fast in who I knew myself to be. I can hardly think back across my life without the best stories coming from our time together.

Five years have passed since this friendship ended abruptly and without obvious (to me) reason. For a time, I figured that we'd just run aground of something, that we would circle back into our relationship once again whenever what ever it was worked itself out. A year passed, then two, then my mother got sick and died, then I got cancer, and now I am here on another shore of living, the phantom feeling of someone missing popping up at moments when I feel most unguarded.

Because losing this friendship has been unmooring, disorienting, anxiety-provoking in ways that I'm just staring to unpack, I have decided to reach out to her, just to say hello and tell her that I am sorry if I did something wrong. I've decided to put up or to be prepared to just let it go. Thinking about this gives me a tightness in my chest that reminds of my six year old self trying to swim the length of the pool in a single, long-held, under-water breath. I feel my lungs burning and know that this is a surfacing that has to happen even though I want to continue to kick against it. But it's time to tidy things up, know where they stand, let things come full circle once and for all.

just to let it go

Regret nothing. Not the cruel novels you read
to the end just to find out who killed the cook.
Not the insipid movies that made you cry in the dark,
in spite of your intelligence, your sophistication.
Not the lover you left quivering in a hotel parking lot,
the one you beat to the punchline, the door, or the one
who left you in your red dress and shoes, the ones
that crimped your toes, don’t regret those.
Not the nights you called god names and cursed
your mother, sunk like a dog in the livingroom couch,
chewing your nails and crushed by loneliness.
You were meant to inhale those smoky nights
over a bottle of flat beer, to sweep stuck onion rings
across the dirty restaurant floor, to wear the frayed
coat with its loose buttons, its pockets full of struck matches.
You’ve walked those streets a thousand times and still
you end up here. Regret none of it, not one
of the wasted days you wanted to know nothing,
when the lights from the carnival rides
were the only stars you believed in, loving them
for their uselessness, not wanting to be saved.
You’ve traveled this far on the back of every mistake,
ridden in dark-eyed and morose but calm as a house
after the TV set has been pitched out the upstairs
window. Harmless as a broken ax. Emptied
of expectation. Relax. Don’t bother remembering any of it.
Let’s stop here, under the lit sign
on the corner, and watch all the people walk by.
- Dorianne Laux “Antilamentation,”


The dusty boxes are still sitting in the bottom of my closet back home in Oklahoma, my meager pilfering through them surfacing so many emotions that I felt like I needed to stop, to breathe, to reframe my thinking before I carried on.

A text sent to my friend said it all:
"Sorting through all of my childhood to pre-Portland life. Kind of intense to realize what a depressed and fcked up young adult I was, even if people didn't see it on the outside. Crazy."

and

"It's really weird to struggle with the idea that there was a lot of lost time in my life. Time I will never get back and time I may not have in the future."

So today when the poem above from Dorianne Laux came through my feed, something hardened from long ago became soft inside of me.

You’ve traveled this far on the back of every mistake,
ridden in dark-eyed and morose but calm as a house
after the TV set has been pitched out the upstairs
window. Harmless as a broken ax. Emptied
of expectation.





Every year I spend the days before Yom Kippur reflecting on the past year (no, I'm not Jewish but I borrow this tradition). Thinking through the things that made me happy, thinking through the things I regretted or that made me sad or wistful, thinking of things I want to do in the next year, who I love, who I want to spend time with, how I want to challenge my mind and life to do good things. It's a important time to write things down, to take stock, to see where I am going.

Sitting with these feelings this in-and-post cancer year has brought in the added layer of "time". Time I have wasted, things I have done, situations I have been in during my life that were neither healthy nor happy. And the great sadness of looking forward and thinking about time and not having it and how horrible that would be.

{And then reading that Susan Sontag was diagnosed with Stage 4 metastatic breast cancer in 1975 and lived until 2004. So go figure.}

What softened inside of me was the realization that life is too short to dwell in what happened in the past, to rehash the things you wished had happened in relationships, to question decisions that led to different paths than the future I had seen for myself. Even for a person like me who has struggled with the depressive tendency toward rumination over such things [the twisting of invisible hands and the sighing of invisible sighs that leaves you sitting in a rut you can barely peer out of], there is the possibility to not revisit this, not to drag it with me, just to let it go.

Relax. Don’t bother remembering any of it.
Let’s stop here, under the lit sign
on the corner, and watch all the people walk by. 

Amen.

Blue Ocean

Anne and I pass the pad of paper back and forth, pausing between our writing to sometimes collect our thoughts, sometimes take a breather, sometimes forget to respond until there is a spark that sends us scribbling and sending it the other way. The pad of paper floats over the ocean between us, through wires and time zones and need, a raft for one of us to sit upon while the other kicks the water to propel us forward. The raft is well-balanced, the sun not too hot and a long-ago friendship alights again within this new, unfamiliar space.

We keep each other afloat in these uncharted waters of post-cancer living, this space without a map where both of us churn in our different buckets trying to get out of our heads and grapple with our lives. Our needs are different and our fears are different but the touchstones are similar: How do we live our best lives or, how to get back to living having lived through this time? Being smart, sensible, educated women doesn't make the emotions or the fear of a twinge in the kidney any easier. And so we stretch our legs long in the cool, sometimes rocky water of our exploration, sending the paper raft back and forth ferrying empathy, love and comfort.

Twelve months from diagnosis, six months after treatment, five years from now to being clear. Kick, kick, kick.

Love you, Anne.

Thinking of him today.

The memory now is more like a flickering home movie cast in a yellowish light, faded with time. He stands at the top of our neighbor's driveway, basketball tucked under one arm, the other arm extended in a slow wave goodbye. On his face a big grin, like only Hunter had, a promise that we'd see each other again soon. I drove away, back to Dallas, leaving him in my rear view mirror.

My brother and I were dancing through adolescence together. He, four and a half years my junior, had started showing up at beer parties at friend's houses. I remember standing with him and my cousins, drinking Coors Light and watching Kids in the Hall one night at a party. "This is the little brother I want to hang with", I thought. "Finally."

He loved Steve Miller Band and we played it unceasingly in the miles that we drove up and back to our neighboring town in the weeks after Dad died. Dad's Corvette was a sweet ride and just sitting in the small, leather-encased compartment of the car made us both feel calm, closed in, held safe. Mostly we just drove, listened to music and kept moving, trying to make sense in our own way of what had happened. Ten miles up, ten miles back. Repeat. Looking back at the relationship Hunter had with my dad, I can't imagine how he struggled in those days. I look at my own son's relationship with his dad and can't imagine them being separated.

We had our stories, Hunter and I. I was the sister who would come home from boarding school, grab my brother and the car and go for drives in the country so I could smoke cigarettes and we could catch up. We had a huge wood-paneled station wagon that was a favorite for going fast down dirt roads until the day the pedal stuck and we both thought we were going to die or the car was going to blow up. Then there was the time the VW bug got stuck in knee-high Oklahoma clay and we had to dig it out and hay the tire ruts for traction. That time Hunter turned the hose on the inside of the car to wash out the mud, thinking it was like the VW Thing with holes in the bottom. That image of him with the running hose pointed in the car is like an Instagram photo seared on my brain. But time passes and the memories feel like black and white photos kept in a book you only take down every once in awhile, tapping the picture and muttering "now that was the time...". When the person has been gone longer than they were with you, you have to dig deep and muster the memory, even as their names live on with your children.

I was standing in my apartment in Dallas when the phone rang. "Hey Fran, it's Kim. I'm in the neighborhood. Can I stop by?" My beloved cousin Kim was on the phone. Kim who wouldn't be just stopping by unless something was wrong. Shit. Shit shit shit shit shit shit shit. My hands started reaching for things to put away, to pick up, to neaten, to tidy. Grandma? Did something happen to Grandma? Oh my god, it couldn't be Mom. Oh please don't let it be Mom. Who else could it be? Shit shit shit shit shit shit shit. Hunter, Gunner, the beer drinkin' lover (as my dad used to call him, given his Italian and German roots). Gone. I can see him driving down the road so many years ago today, seconds before the car flipped end over end into a field of green. Arm out the window, wind in his hair, smile on his face, world at his feet.

I used to try to make myself feel better about losing him. "Who knows what his life would have been like," I'd tell myself. "Anything could have happened. He could have been awful." It was a way to convince myself that it was ok that he was gone, that dying at 15 somehow kept him from heartache of his own or from hurting others. Now I wonder who his 37 year old self would be.

There was a Snoopy sleeping bag that the new baby brought. "He's a baby, how did he know I wanted a Snoopy sleeping bag!" I asked my mom. "He's your baby brother, Frances, you get to help take care of him," the adults said. My five year old brain wrapped around that and held tight. This was the baby I'd hoped for forever, it seemed. This was the day of big banners on the front of our house made by friends who were welcoming my adopted brother home. This was the gift of a lifetime.

I miss you buddy.

Five hundred twenty-five thousand six hundred minutes

I'm pretty sure that it wasn't a day like today, where the sun is shining through the windows and my beautiful girl is playing "Ode to Joy" on the piano just feet away. And I am pretty sure it didn't even occur to me when I made the biopsy appointment that my official "diagnosis day" was going to be St. Patrick's Day. And I know exactly where I was on March 21st, 2011, the day I will always think of as my own personal "D day".

It's been 365 days since I sat at my desk and heard the words "cancer", "Invasive Ductal Carcinoma", "grade 3 tumor", and "breast surgeon". The capable side of my brain had clicked into gear and I was dutifully writing down everything the radiologist said, asking the right questions, knowing that my husband would want to know the details so he could launch his own fact-finding mission.

And then there was the call to Nick, which brought it all to the surface and the second call to my dear friend Ashley who was wired for Ann Arbor breast care doctors and the third to my sisters. And then the numbness of that hour and fifteen minute drive home when I just didn't know what to do, think or feel.

I sit here a year later, feeling like it's been more than a year and in some ways wondering where the time has gone.

Five hundred twenty-five thousand six hundred minutes.
365 days.
12 months.
1 year.

When people told me it would be a year of my life, I screamed. I was furious. "I don't have time for this! I have a new job! I'm turning 40! It will NOT BE A YEAR!"

But it turns out that it's taking more than a year of my life. There is the year of fighting cancer, of re-arranging your body to keep it safe and re-arranging your life to up your chances of survival. Then there is the next year of your doctor telling you that you have to lose weight, that you have to get back in fighting shape. Yes, fighting shape because you are still fighting. And one year stretches to five and your "illness" becomes something to manage long term.

And the only thing that gets you through, the only thing, the ONLY thing is the love of people around you.

So today I am thinking about those five hundred twenty-five thousand six hundred minutes that have moved through my life this year. As I am typing this, the beautiful song "Seasons of Love" from the musical RENT keeps running through my head.

Five hundred twenty-five thousand six hundred minutes
Five hundred twenty-five thousand moments so dear
Five hundred twenty-five thousand six hundred minutes
How do you measure, measure a year?

In daylights, in sunsets
In midnights, in cups of coffee
In inches, in miles, in laughter, in strife
In five hundred twenty-five thousand six hundred minutes
How do you measure, a year in the life?

How about love?
How about love?
How about love?
Measure in love

Seasons of love
Seasons of love

Five hundred twenty-five thousand six hundred minutes
Five hundred twenty-five thousand journeys to plan
Five hundred twenty-five thousand six hundred minutes
How do you measure the life of a woman or a man?

In truths that she learned
Or in times that he cried
In bridges he burned
Or the way that she died

It's time now, to sing out
Though the story never ends
Let's celebrate
Remember a year in the life of friends

If I could to add my own minutes, they would be measured in:

special dinners delivered with love
minty rosemary spray
threats of pink jumpsuits
wigs from friends
Hermes scarves
sisters' love
rides to chemo
hugs from co-workers
cinnamon rolls
special bracelets
I love yous from my children
strength from my husband
curiosity from Kindergarteners
stolen hours at chemo
breakfasts at Zola
understanding bosses
cheers from my wise elders
missing my mom
love of the fuzzle from my niece
laughter
laughter
laughter
thoughts of fairy-dust shooting nipples
worry
sadness
fear
joy
strength
courage
beautiful parties
hugs from friends
clipping shears
coffee between labs and infusion
the smile of lab techs
occluded veins-because they should be
learning to accept appreciation
carpool talks
deep conversations with total strangers
hearing everyone-knows-someone's chemo story
cake appearing out of nowhere
looking forward
looking back
looking forward
looking back
looking forward and forward and forward again.
more things than I could ever describe here

So I end today wondering what this means for this blog. What started out as a quick way to update people on what was up with my health quickly morphed into a space for me to get out what I was feeling about working through treatment and all that went with it. It's been amazingly cathartic for me. But is it over now? It feels incredibly ego-centric to keep writing. Surely this has been enough about me to last a lifetime. Or do I say "screw it" and just keep writing about this next phase of rebuilding my health and not worry about burdening people with more stories? It's hard to decide. Part of me wants to keep writing so that there is a time capsule for my kids to reflect on when they are old enough to wonder what happened in those days. Another part of me recognizes that this year has come to a close. I just don't know. Maybe you could let me know.

Five hundred twenty-five thousand six hundred minutes
Five hundred twenty-five thousand journeys to plan

Here's to the planning. Thank you for every minute...
that I can measure in love.

Imperfectly perfect.

This is dedicated to my friend Tanya Luz, who way back encouraged me to let it be what it was, to embrace what it is and hold my head high--or shake it when necessary.


We wheeled into the parking lot, crunching on the ice underneath, a little giddy at the thought of a few hours away for a little rest and relaxation.

"Oooh, let's start in the hot pools and then go on to our appointments," Lisa noted as she started out of the car.

I froze. "I didn't bring a swimsuit," I said.

"Oh, I didn't either, not a big deal," she replied, and then stopped. "Oh."

We both looked at each other for a minute. "Lis, I don't think I can hack sitting with a bunch of people I don't know with these scars. It wouldn't be anything if I had boobs, but I just don't think I can do it."

"That's ok, let's just go in and see what the situation is inside," she offered.

[I need to pause here and say that from time to time I realize that I am waaaay TMI in what I write here. When I think about my male friends reading this stuff, I cringe. I wonder sometimes if it's crazy that I write about these things and then I realize that people can decide to read if they want to. And, for those of you who are here because you are googling "schlongs"---yes, I can see you--sorry to disappoint.]

So we cruised inside to this beautiful spa teeming with people, grabbed our robes and headed into change. The women's locker room was packed and suddenly I felt like the early-developing 5th grade girl trying to hide the embarrassment of her breasts while clumsily changing clothes. Take off the shirt, hold the robe with chin, try to get into robe without flashing everyone, {shit!} drop robe. All the while uncomfortable and slightly panicked that I am going to make someone else uncomfortable. Yes, uncomfortable. Because it's not really about me feeling like a freak so much as shielding others from the discomfort of the experience of seeing someone with a double mastectomy.

But on the way into the showers I noticed something. Women line the dressing room in various stages of disrobing and, as I cast my eyes around the place, it hit me how imperfectly perfect the female form is. There are women of all shapes and sizes. Lumpy, bumpy, big, small. Even the ones in the best shape had boobs that were disproportionate or hips that were too wide or, gasp, cellulite.

Imperfectly perfect.

In a flash, I thought of my friend Tanya who used to do burlesque and her stories of women with all sorts of crazy, mixed up bodies who would get up and shake it, just because they could. And in that moment I realized that I am just another of these imperfect bodies lined up. My lack of boobs makes me a little bit more of a sideshow, but I may as well own it. In all likelihood, one of these 16 women in the room will have breast cancer too. In all likelihood, they will all have mothers or sisters or friends who will find themselves in the same situation I am in. In all reality, my hiding doesn't help anyone.

Out in the pool, the water was so hot and the air was so cold. We women alternately crouched under the water and rested alongside the pool. Sitting with my head back, talking to my sister, relaxing into the feeling of purification, of lifting, of being just present with where I am. Delicious.

Navigating Who I Am (in this space)

Little hands crept around the door frame. "Mama?" her voice called tentatively. "Can I ask you something?" I was in the shower and panicked for a moment. Ever since my first surgery, we'd made an agreement with the kids that time in the shower and getting dressed time were "personal time". "Dad doesn't watch Grandma Pat get dressed. There is a time when you get old enough that privacy becomes important," was my reasoning to them, but it was 100% that I didn't want the children to see what had become of my scarred and destroyed body. I thought it would scare them. Because, in all honesty, it still scares me.

But here she was, my little girl, needing something.  "Come in, sweet girl," I called. She came in, fully in the middle of her thoughts, and stopped. She looked. She looked puzzled. Then, taking in what she saw in this new landscape of her mother's body, she started in with her question. I smiled, she smiled. It was ok.

Dealing with the reality of what happens to your body during breast cancer treatment is one of the most difficult aspects of living through this journey. You feel sick from the treatments, you fear death, you fear the unknown, you have to work through all sort of emotional issues with friends and loved ones about your illness but one of the hardest things, every day, is to deal with the body that you inhabit. For me, that is feeling stripped down, genderless, alien myself. I remember seeing a picture of Ralph Fiennes as Voldemort in the last few Harry Potter movies and being horrified because I identified so strongly with his bald, pale, almost genderless presence. That's the shit side of what body image in this space does to you. I've mourned that in previous posts, but it's something that is always with me.

Yesterday, a friend sent me an article that spoke so clearly about what its like to feel the tug and pull of these body changes. Even if you are right with it (which, obviously, I am SO not), there are others whose opinion, feelings and thoughts you have to navigate. Children, partners, friends...it's overwhelming. My means of dealing with it have been to turn inward and just try to put my head down and get through it, figuring that at some point the new normal will kick in (post-chemo, new surgeries, weight loss) and I will be able to deal, or at least deal with what is permanent. But its hard and lonely working that way, even though daily I hear from friends that I look beautiful. It's a mind mess I that I am still working to resolve.

So this article and the Scar Project in general has done a lot for me. These are *beautiful* women, lovingly photographed by a fashion photographer. Some look amazingly beautiful, some are just who they are. I remember seeing the photo of the pregnant woman on a poster in Cincinnati and being shocked and horrified before I myself was a double mastectomy survivor.

Now, I want others to see so that we can make this all more normal. It's there and it's the truth. And there is no shame. And there can be beauty. But shit, it's hard.

Article here:  http://www.brainchildmag.com/essays/fall2011_lynch.asp

The Scar Project website here: http://www.thescarproject.org/