One girl's way of working out her experience of breast cancer through rapid-fire blogging. What you see is what you get. Me, relatively unedited and not always composed. *The title of this blog is an homage to The Flaming Lips song "Yoshimi Battles Pink Robots", one our family grooves to in the car. ['Cause she knows that/it'd be tragic/if those evil robots win/I know she can beat them]
Showing posts with label thankfulness. Show all posts
Showing posts with label thankfulness. Show all posts
Wednesday, August 10, 2016
Continually Make Anew
It didn't really dawn on me this morning as I drove down Hope street, D riding shotgun, talking about the election, basketball, his high marks at his last camp in "intangibles (hustle, coachability, attitude). Nor did it occur to me as I sat having coffee with a new colleague, touching on the rituals of our wedding day, what it meant to us, where the ideas came from, far and wide.
But now it's hit me, 14 years ago today I got married to someone I loved very much, still do in ways that I never thought imaginable at the tail end of a sad and hearbreaking divorce, so many years of trying under our belts. In those years, we faced so many obstacles: moving, changing careers, birth of children, sickness, death -- so many of life's challenges (and joys) hitting us pretty much year over year, some level of chaos or disruption being a constant. Looking back at the end of our divorce, it felt like our relationship may never have had a chance to even settle in, much less thrive in the way that it was intended to.
But now, another move, another sickness, more career changes, a little more chaos down the road, it occurs to me that in the chaos might live some of the thriving. I am not always quite sure how we are doing it, but we are good. We have beautiful children and a life that we have chosen to live amicably. We are thoughtful of each other and, in some ways, more thoughtful of the ways that remarks or arguments land than we were when we were married. These days, it seems we can breathe and step back and apologize, because it's good ground we are on and neither of us wants to ruin it. Our children are thriving in the space we are able to hold, for this time and in this moment.
I would be lying if I said it was always this easy, or there weren't days that I look at families walking together with a twinge of envy, or if I wasn't worried that the permanent addition of new people to the mix will disrupt this good balance or if I didn't acknowledge how it's weird and hard to understand how to be in this space with a former partner when my normal course of action in breakups is to exit and not return.
But it's the remaking and continually making anew that is the path here, no other choice if we want our children to be at their best, no other choice if we want the one we said yes to so many years ago to live their life happy in our world as it exists now. Because, if we are lucky, we are always each other's, in an altogether different way and in a different space, sitting at weddings and births, shouldering emergencies or loss, opposite one another on the journey of parenthood for as long as life lets us be.
Friday, April 10, 2015
Interior: On Writing
I struggle with this idea of writing. There is a part of my heart that loves it, that loves the release that I feel when I put together something that resonates with me, with others, brings others to tears or laughter or whatever it is. I feel like sometimes this will be my mark if everything falls into the shitter and I leave this earth earlier than anticipated, something for my kids and my friends to hold onto.
And there is another part of my heart that understands the weird precarious nature of writing, the part that doubts that what I do is useful to anyone that doesn’t know me, that pieces are touching because the people that read them are people who already love me, and that for those people it’s like reading a piece torn from a diary from which you can identify parts and pieces that make sense. But I wonder, really, if these things I trace onto the paper make a difference to anyone outside of the circle of my friends who hold me and my experiences close. I’ve had amazing feedback from people that I have loved and I’ve been really wounded by people I have loved not giving me any feedback. It’s an interesting and tender spot that I don’t want to care about, but I do.
I’ve been thinking about this a lot lately, wondering if that is why I have chosen the rapid-blogging format I use (I don’t know if this is such a thing or if I made it up, but this it’s writing all in one shot, less-than-miniscule-to-zero revisions before posting, get it out and get it up style). If I do it quickly, nobody can remark on the quality. If there are no revisions, I can blow off any mistakes or feedback. If I don’t put in the effort and if I only rely on the whim of the moment, I can’t be expected to be serious about this in any real way. In short, I avoid all of the conflict of criticism or the reality of feedback by being 13 again. My mother would laugh out loud at that idea.
So I’ve been thinking about this a lot. I’ve been thinking that I still only really want to write to get things out that I notice, that I love just writing thinking that people I know on Facebook will read it, that I am not a “writer” and I have no aspirations to make this any more than it is. But I need to take this to another level, maybe work in a longer format or build in revisions or begin to take things out of this stream-of-conciousness format that it lives in (as I am typing now) and into something more coherent and cohesive. There is part of me that loves things raw and I have experienced my friends transitioning their gifts from raw talent to tutored and trained talent with mentorship and help and sometimes the transition is rough. I’m not sure what it means to lose your edge and some of the authenticity either. Maybe I’m trying to convince myself already that this is not a good idea, so I’m going to say it before I back away from it completely… I think when I get to Providence, I am going to find a writing coach.
There, I said it.
Now I have to do it. Or come up with a really freaking good reason why not to (which may be, well, I’m not writing coach material).
So wish me luck, friends. I’m peering beyond the edge on this one.
Sunday, April 20, 2014
Redolent with possibility
For Alvin, who inspires me and for Paul, who makes me a better person.
*******************************************************************************
It's hard to imagine what it is like to live in an environment where you don't have the weather to mark the passage of time. Seasons rise and fall in Michigan, none more so on the thumping, wet, cold darkness of Winter and none more delightful than the brilliant rays of the sun in Spring. We emerge, hunkered down from holding on through the most bone-chilling weeks of near desperation to a sky blazing blue and redolent with golden light. And for those months of light, we don't look at the sun as an advantage, we relish it. Seattle is like this too, as is Portland and all other climates I've lived in where people are deprived of the nectar of light. It's delicious beyond belief. It gives us pause. It renews us on a cellular level.
There's a lesson in this renewal, one subtle but worth exploration in trying to clear out the mental models that stand in our way. I sat at a bar the other night and explained to a friend how incredibly horrified I am of growing old, that there is something inside of me that shudders when I think of aging; that not enough of my life has been lived, that whatever shreds of youth I have had left will leave quickly, that I will never have again the time that I squandered when I was young. In my brain, this causes an odd inertia. I drag my feet, like some 3 year old who wanders the room because he doesn't want to leave, hoping time will stop or slow down.
But this year feels different. Everything feels like it wants to be new. Clicking off miles on my walk to and from work, new skincare, new sunscreen, new bright running shoes on my feet, new music curated by friends, new writing, new reading, new perfume on my wrist, new, new, new.
More new this year than last. This year is about choices. This year is about vision. This year is about bursting with creative ideas, about curating again, about feeling the current of aliveness from discovery. It's the act of assembling and reassembling the parts to find the best combination. It's about paying attention to the little things as well as the big things. It's about being in it, swimming in it. It's about paying attention, having an avocation or two that sharpens your eye. Boldness and subtlety. Braveness and humility. Not being hamstrung by anything. Loving the process and expecting amazing outcomes. Humming at the cellular level with something that stirs your very soul and marrow. To choose to be alive in a fundamentally exciting way, to live a life powerfully evocative.
I love this feeling. I wish I could bottle it, the possibility of it all. In these moments, I often think of my friend Alvin and his ability to keep it fresh, moving, thoughtful; how he is always turning the dial just a bit to find the right frequency. Or my friend Paul whose practice of reflection and personal editing is not a task, but an essential part of his being. And Annie, and Sharleen, and Nicole. All of these people who have curated lives that are rich with interest and possibility. They remind me of how resplendent with interest the world is, how positive and alive it can be when your creative side gets to lead.
How to keep this feeling alive? How to carve out the time for energizing work? How to construct the next stage of life so that the cellular hum remains? Intention, focus, space, opportunity, running lanes, collaboration, courage, joy, choice. Yes.
Sunday, November 27, 2011
Restarting
"Did it feel short, Mama, or did it feel long?" David looked up at me with his big brown eyes and I had to think for a minute about what he was asking.
"This chemo, D, or just in chemo in general?"
"The whole thing, Mama. Did it feel like it went on for a long time, or did it feel short?"
I had to think about it for a minute, because at that exact moment one of the longest, most grueling experiences of my lifetime actually felt short. I was over the line. It was over. I was done. What was there left of that experience but to leave it behind?
Even though I am only two days out from the last session, I'm already dealing with a myriad of complex thoughts about what it means to be out of treatment. I feel like I am seeing glimmers of my old self coming around, touching into the old me and seeing the possibilities of a life restored. Last night I stood washing dishes and listening to Nick play various tracks from Jimi Hendrix on the stereo while he and the kids discussed Hendrix's style. We had just spoken of going to Seattle to celebrate our 10th wedding anniversary in August and to show the kids the town. Suddenly I was awash in tears, feeling in my body the real me coming back to take that journey with my family and all the wonderful things it will entail.
I can feel what it will be like to be normal again and it's just so completely overwhelming.
But on the other side, I don't want to lose the significance of what I have been through, what people have helped me through, what women and men go through every day who live with cancer. Part of me wants to hold on, to remember how shitty it felt, to remind myself of what it took from me so that I make good choices about the way to live going forward. I don't think I can shut the door on this, nor do I want to, but I'm not sure what kind of space to give it in my life.
I wrote a post awhile back about this year being a pause in my life, the fermata, the time that the music stops for as long as needed. My wonderful friend Deb, herself a musician, shared this thought with me:
Maybe you start with humility. Maybe you let yourself reflect. Maybe you don't push yourself back into the busy-ness of what life is about too quickly. Maybe you take time to heal and appreciate and rest. Maybe the starting back in comes slow, the rhythm restoring as if feels right, first violin be damned.
"This chemo, D, or just in chemo in general?"
"The whole thing, Mama. Did it feel like it went on for a long time, or did it feel short?"
I had to think about it for a minute, because at that exact moment one of the longest, most grueling experiences of my lifetime actually felt short. I was over the line. It was over. I was done. What was there left of that experience but to leave it behind?
Even though I am only two days out from the last session, I'm already dealing with a myriad of complex thoughts about what it means to be out of treatment. I feel like I am seeing glimmers of my old self coming around, touching into the old me and seeing the possibilities of a life restored. Last night I stood washing dishes and listening to Nick play various tracks from Jimi Hendrix on the stereo while he and the kids discussed Hendrix's style. We had just spoken of going to Seattle to celebrate our 10th wedding anniversary in August and to show the kids the town. Suddenly I was awash in tears, feeling in my body the real me coming back to take that journey with my family and all the wonderful things it will entail.
I can feel what it will be like to be normal again and it's just so completely overwhelming.
But on the other side, I don't want to lose the significance of what I have been through, what people have helped me through, what women and men go through every day who live with cancer. Part of me wants to hold on, to remember how shitty it felt, to remind myself of what it took from me so that I make good choices about the way to live going forward. I don't think I can shut the door on this, nor do I want to, but I'm not sure what kind of space to give it in my life.
I wrote a post awhile back about this year being a pause in my life, the fermata, the time that the music stops for as long as needed. My wonderful friend Deb, herself a musician, shared this thought with me:
I like the idea of a fermata. There's a real beauty in that time when the note is held, or even better, when the rest is held. Everything is suspended, time stretches, you stop looking back at the last note, and start looking forward. You know that the tricky part about a fermata - at least in ensemble playing - is starting up again, since the group has temporarily abandoned meter. That is why first violinists get so good at the quick rhythmic inhalation that warns "we're going to start now!"How do you start up again after something like chemo? I've been sitting with this idea for weeks now. I'm feeling around in it now. I'm letting myself build into it, tears and all. As they unplugged me from the chemo line for the last time, I wept. Not so much for joy, but just for the end of it all. My tears freaked the nurse out, but my friend Jenn was there crying along with me. I passed over the finish line neither on my knees, nor with arms raised in bold triumph, but rather with an appreciation that was humbling to the greatest degree.
Maybe you start with humility. Maybe you let yourself reflect. Maybe you don't push yourself back into the busy-ness of what life is about too quickly. Maybe you take time to heal and appreciate and rest. Maybe the starting back in comes slow, the rhythm restoring as if feels right, first violin be damned.
Friday, October 14, 2011
Solidarity
My bonus mother-in-law Ginny had that Ginny look on her face...the one she gets when she's got something to tell you or share with you. "I have something for you," she said as she slid a black bag across the table. We were sitting in the sunshine, drinking wine and enjoying the afternoon on Federal Hill. "Open it and tell me what you think."
I opened the bag and the box inside to reveal a thin wire bracelet bearing a medallion with a breast cancer ribbon etched on to it. When I looked up, she held up her wrist which bore the same bracelet. "I bought them for us all," she said. "Pat, me, Maryann and Lynne, Katie, Alyssa, Jenn...we all have them. We all just feel really helpless because we aren't there with you during all of this. This way we are connected to you every day and you know that we are with you too." Katie held her's up, as did Jenn and something passed between all of us that remains deep in my heart.
So today, hundreds of miles away, I'm thinking of those special women and how incredibly lucky I am to have them in my life. I'm thinking of how my life is enriched by the time I spend with this family who I was so lucky to gain as part of the excellent husband deal I got. Today I am feeling really lucky.
I opened the bag and the box inside to reveal a thin wire bracelet bearing a medallion with a breast cancer ribbon etched on to it. When I looked up, she held up her wrist which bore the same bracelet. "I bought them for us all," she said. "Pat, me, Maryann and Lynne, Katie, Alyssa, Jenn...we all have them. We all just feel really helpless because we aren't there with you during all of this. This way we are connected to you every day and you know that we are with you too." Katie held her's up, as did Jenn and something passed between all of us that remains deep in my heart.
So today, hundreds of miles away, I'm thinking of those special women and how incredibly lucky I am to have them in my life. I'm thinking of how my life is enriched by the time I spend with this family who I was so lucky to gain as part of the excellent husband deal I got. Today I am feeling really lucky.
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