I sit here at my computer and 10 feet away he sits with his guitar across his knees, seated on a zigzagged ottoman that accentuates how much he's grown in the past few years. He's knees and elbows and huge brown eyes and a gorgeous smile. As we were leaving the orthodontist's office today, I kept telling him how weird it was when he turned 6, when he went into first grade, that first grade was the first shred of proof for me that he was going to grow into a young man. "And, today here we are, amore," I said over my shoulder with a smile. "Today and you are a middle schooler and we are on to braces." He smiled his gorgeous sweet smile and leaned forward and put his hand on my shoulder, which would have been his head if the distance of the seats had not been such.
This boy is a favorite teddy bear wrapped in an enigma. He's honest and disclosive in one minute, difficult to gauge the next. He prefers, almost any day, to recline right on top of you in the cold Fall wind. He hasn't figured out that that's uncool. He's just starting to sense what is uncool. I don't know when he's going to grow into that uncool thing and I alternately feel like I haven't done enough to middle school him up and thankful for the buying of time that his sweet nature has given us.
He converses easily with adults. He's building his own style of humor that he tries on with his sister, dad and me at every turn. He loves a turn of phrase or a double entendre. There is no bad fart joke. He cracks up when he talks about butts. To match that, I showed him Sir Mix-A-Lot's "Baby Got Back" and he spent most of the next day commenting on the fruit, and less on the back, or being a little "uhhhhhh, that was weird" regarding the ardent appreciation of the female form through Sir Mix-A-Lot's voluptious stylings. I think the giant buttcrack was perhaps the biggest hit. So it goes at this age, I've kept reminding myself. So it goes.
This is the kid that still likes me to tuck him in at bedtime, who is happiest when he can reach across and touch your hand. He is tactile and yummy and stinky and kind. When I found out I was having a boy, I thought "Good, I know nothing about what it's like to be a boy. I can see him for himself, in all of his dimensions, without clouding my
[Ok, so he just walked over as I was typing this, gave me an enormous, lingering hug]
without clouding my view with all of my own stuff." And that's it, every day. He's still a mystery to me in so many ways, such a beautiful thing to unwrap, like sitting waiting quietly for the birds to come out. They come and you get to see beautiful things, but sometimes it's just the stillness that brings them, the moment of breathing with whatever is there. Or, the time that those same creatures catch you unawares, explode into view, fill you with delight and catch your heart with laughter. That's what D is like. He's deep and sweet and hilarious. He is golden. I love him so.
One girl's way of working out her experience of breast cancer through rapid-fire blogging. What you see is what you get. Me, relatively unedited and not always composed. *The title of this blog is an homage to The Flaming Lips song "Yoshimi Battles Pink Robots", one our family grooves to in the car. ['Cause she knows that/it'd be tragic/if those evil robots win/I know she can beat them]
Showing posts with label milestones. Show all posts
Showing posts with label milestones. Show all posts
Monday, October 6, 2014
Friday, August 5, 2011
There are these days that are the days.
First the health update: Chemo #3 went rather well for the most part. We switched up the Neulasta situation and moved to the 10-day shot sequence of Neupagin, which lessened the horrible heaviness in my chest. I had a couple of rough days in there, but deal-able. Shooting up Neupagin the parking lot of David's baseball game is something I won't forget too soon. That and the insert says "do not shoot into scar tissue or stretch marks." Um, on this belly? That gives us a lot less real estate, people. I'm just sayin'.
Today is the last AC and then on to the extremity-numbing Taxol (which scares the bejeezus out of me) for four more and then I am DONE. Want to know what I am going to do after? I am going to have a big, fabulous glass of good wine. I am going to eat an amazing meal. I am going to work out. I am going to go somewhere wonderful with my husband. I know I am only half way there, but I can see the light. I can. I just need to remember that it's there.
Now a story:
"No, No, I can do it myself" she says as she pushes off with one foot, wobbles a bit and then clicks into the rhythm of movement. I stand back and watch my sturdy, spirited 5 year old girl grasp and master the balance and physics of the bike. At my elbow, David says "Just one more run, Mom, how about it?" and we move his bike onto the grass and I run beside him, lightly grasping onto his shirt, as he slowly and methodically pedals in a wide circle. Ava likes the flatness of the pavement and working without a net between she and the skin-skinning bitumen. David's skill improved 1,000 fold when we moved onto the field. "It would be like falling during soccer", he says, "or not even that bad." No sooner he says that and he's sailing along, free of the fear that had brought tears to his eyes just an hour before.
I woke up yesterday morning with a head full of steam about teaching the kids to ride their bikes. Tomorrow was a chemo day, I was going to feel crappy next week, time was running out on our second goal (first goal = learning to swim, second goal = learning to ride a bike), SuperNanny Steph was there to help, it was only going to be 80 degrees... so I closed my computer at 5, rounded up the kidlins and Stephanie and off we went.
It must have been a pretty funny sight, me in my baldiness/do-rag, skirt and mary jane shoes running up and down the parking lot grasping onto the bike and shouting instructions. Sweating buckets and realizing about 30 minutes in that I hadn't taken off the horrible, weighty foobs which were adding to the slog. In fact, one guy stopped for quite a bit to watch. He had a huge smile on his face so I suspect he was going to offer a compliment, but who had the time to chat when there were kids to push.
Our dear friends, the Leos came over to find us too. Miriam and Andrew riding circles around David and Ava, luring them into their mini biker gang and shouting words of encouragement: "Think of something yummy like chocolate cake! Think of your friends! Think of good things! You can DO it!" We ran and rode, sweated, screamed our excitement, gave big hugs, did happy dances, encouraged each other. If it weren't such a trip and hysterical to hear and see, I would have been a pool of tears for the gentle sweetness of it all. Delicious.
Standing there with my friend Anne and our kids, I realized it was the first day in so long that I just felt like a regular mom to my kids. Not a sick mom, not a mom who is too tired or busy or down to do something, not a mom with cancer. Just a mom, and a mom who loves being there for these milestones in life, who loves hugging her sweaty, wonderful chickens after they accomplish something they are so proud of.
And then it hit me that by the grace of the universe, an early diagnosis and mostly just plain luck, I will be standing there for many more.
What luck, and luck it was that I caught this disease when I did.
And that nearly blew my mind.
You never know what will be handed to you. You never, never know.
So today, I am thankful for that little bit of time. The old normal in this temporary "new" normal. And I hope they will remember it too.
Today is the last AC and then on to the extremity-numbing Taxol (which scares the bejeezus out of me) for four more and then I am DONE. Want to know what I am going to do after? I am going to have a big, fabulous glass of good wine. I am going to eat an amazing meal. I am going to work out. I am going to go somewhere wonderful with my husband. I know I am only half way there, but I can see the light. I can. I just need to remember that it's there.
Now a story:
"No, No, I can do it myself" she says as she pushes off with one foot, wobbles a bit and then clicks into the rhythm of movement. I stand back and watch my sturdy, spirited 5 year old girl grasp and master the balance and physics of the bike. At my elbow, David says "Just one more run, Mom, how about it?" and we move his bike onto the grass and I run beside him, lightly grasping onto his shirt, as he slowly and methodically pedals in a wide circle. Ava likes the flatness of the pavement and working without a net between she and the skin-skinning bitumen. David's skill improved 1,000 fold when we moved onto the field. "It would be like falling during soccer", he says, "or not even that bad." No sooner he says that and he's sailing along, free of the fear that had brought tears to his eyes just an hour before.
I woke up yesterday morning with a head full of steam about teaching the kids to ride their bikes. Tomorrow was a chemo day, I was going to feel crappy next week, time was running out on our second goal (first goal = learning to swim, second goal = learning to ride a bike), SuperNanny Steph was there to help, it was only going to be 80 degrees... so I closed my computer at 5, rounded up the kidlins and Stephanie and off we went.
It must have been a pretty funny sight, me in my baldiness/do-rag, skirt and mary jane shoes running up and down the parking lot grasping onto the bike and shouting instructions. Sweating buckets and realizing about 30 minutes in that I hadn't taken off the horrible, weighty foobs which were adding to the slog. In fact, one guy stopped for quite a bit to watch. He had a huge smile on his face so I suspect he was going to offer a compliment, but who had the time to chat when there were kids to push.
Our dear friends, the Leos came over to find us too. Miriam and Andrew riding circles around David and Ava, luring them into their mini biker gang and shouting words of encouragement: "Think of something yummy like chocolate cake! Think of your friends! Think of good things! You can DO it!" We ran and rode, sweated, screamed our excitement, gave big hugs, did happy dances, encouraged each other. If it weren't such a trip and hysterical to hear and see, I would have been a pool of tears for the gentle sweetness of it all. Delicious.
Standing there with my friend Anne and our kids, I realized it was the first day in so long that I just felt like a regular mom to my kids. Not a sick mom, not a mom who is too tired or busy or down to do something, not a mom with cancer. Just a mom, and a mom who loves being there for these milestones in life, who loves hugging her sweaty, wonderful chickens after they accomplish something they are so proud of.
And then it hit me that by the grace of the universe, an early diagnosis and mostly just plain luck, I will be standing there for many more.
What luck, and luck it was that I caught this disease when I did.
And that nearly blew my mind.
You never know what will be handed to you. You never, never know.
So today, I am thankful for that little bit of time. The old normal in this temporary "new" normal. And I hope they will remember it too.
Subscribe to:
Posts (Atom)