I wrote this post about a month or so ago, right on the heels of the dream I described. In that time I had begun to believe that the things I was writing here were too goddamn depressing, that there was no joy in anything I had to say, that people didn't want to read shit that made them cry.
Which lead to me not posting. Which meant that I wasn't being true to myself.
And then I got an email from my friend Lara last night, a long-ago woman with whom I shared a voyage around the world that will forever be imprinted on my mind. Lara is a kick-ass woman and kicked me in the ass to post again. Because Lara is not afraid of scary things. She's not one to need to mark of sunshine and optimism on everything. She just deals with things as they are. At least this is what I remember of her, and loved about her, those many years ago.
So here we go again. Some things not so lovely, some things will be. It is what it is.
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Every once in awhile, there is a dream so vivid and real that I can't erase it from my eyes. Stark-still morning leaves me reliving the flashes and images that the soup of my brain has created the night before: some delicious and gorgeous and sensual and beautiful; others deep and lasting and disturbing and filled with resonant worry. Last night was one of those nights, delivering to me the dream that I've pushed off and aside for the past three years.
I can remember the colors in the dream, deep sapphire blue, lime-emerald green, white...all outlined in a contrasted black...and the incredible realness of what was going on. Frank. True. Honest. Real. Sitting in this dream, watching it unfold, participating in the scene, I believed that it was really happening.
That's because it can. And might. Which is what I thought of in my dappled-sunlight morning, swaddled deep in the sheets, unwilling to peek open to the new day.
It was the first dream I've ever had about getting cancer again, a recurrence which is pretty much a death sentence in the triple-negative world. See, I've never checked the stats, never typed "likelihood of survival after recurrence triple negative breast cancer" into the google jackpot to learn about my fate. My sister mentioned it once, the likelihood that I wouldn't survive another bout, but I plugged my ears and danced around until that voice in my head was gone.
But this dream was the real deal, it was sitting in the hospital getting the news, it was the reality that I was going to die, not a question of if, but when. Fuck. So real, so very real that I did type in those words and my sister was right. Likelihood of recurrence? Much, much higher than other hormone-receptive breast cancers. Survival rate after recurrence? 10%. Survival time? Average of nine months. Nine. Months.
I can't begin to understand what it means to die from breast cancer. My mind goes into overdrive trying to picture it in my head, what it would look like and comparing it to my mother's death from lung cancer. What happens? How do you die? What happens to your body? Who are you in that space? And in nine months? Nine months...on average?
I've lived the past two years in a daze, half denying that I ever had breast cancer, half denying that it can or will come back. It's comfortable, this denial, until you are lying in your warm bed completely awash in the reality that you very well may. fucking. die.
Die.
That something fundamental has happened in your life that threatens your existence in a way that you can't resolve. That you may be that life cut short that people cluck their tongues and shake their heads about. That all of your bravado and feeling good and pushing past the looks of people who know your story may be total bullshit because you may get this again and have to make decisions that are horrible all to extend your life by months...months, not years.
I suspect this reality check is something that every woman who gets breast cancer goes through. I know friends who have had recurrences who are there and are winning. I know few people who have died from this disease. But I have watched my friends and loved ones waste away from cancer. I have watched the bizarre deceleration and crippling otherness of an otherwise vibrant life.
Honestly, this reality is too much for me to handle. It's bankrupt. It's the end of the road. It's the edge of the universe. I can't wrap my head about what it would mean. And I want to believe it won't happen to me. But I'm not that arrogant and I am just that pessimistic.
So how do you live when that veil has been lifted? Does it change anything? Is it just roulette? Isn't there some huge life revelation that I am supposed to get from "holy fuck, I really may die?"
All I can keep with me is the blue and green of the scene, of the movement of people through the film in my brain, of the feeling of reckoning that stayed with me in the dream and beyond.
Final. It is what it is. No way around it. Real.
I wish there was some big pledge at the end of this post, something that would tell everyone that this was going to be ALL RIGHT and that things will be fine. But I am just going to sit with this reality for a bit because I need to, it's been too long that I've pushed it away.
One girl's way of working out her experience of breast cancer through rapid-fire blogging. What you see is what you get. Me, relatively unedited and not always composed. *The title of this blog is an homage to The Flaming Lips song "Yoshimi Battles Pink Robots", one our family grooves to in the car. ['Cause she knows that/it'd be tragic/if those evil robots win/I know she can beat them]
Saturday, September 7, 2013
Friday, September 6, 2013
And in and out of weeks and through a day
For my friend Lara Turchinsky, with whom I have sailed vast oceans. Thanks, my friend.
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“And [he] sailed back over a year
and in and out of weeks
and through a day
and into the night of his very own room
where he found his supper waiting for him
and it was still hot”
― Maurice Sendak, Where the Wild Things Are
My mother used to remark that every time she sat down in a movie theater, she would fall asleep. These were in the post-Dad-dying days where her burdens were heavy and, I suspect, nights restless. We would load into the car during that hot Oklahoma summer and in the cool dark of the theater she'd drift off until one of us would gently nudge her as it was time to go.
In the darkness of the music auditorium I have a similar experience. Away from handheld devices and computers diverting my attention, from conversations and questions and things needing to be done, I let my mind drift and wander. I visualize my life in snapshots and pictures. I let the music seep in and replenish the dry landscape of my harried mind and heart. Within this space, I have learned to let go.
Tonight I spent a good long while with a blue-period painting projected on my mind. Eyes upon the back of a woman sitting in a small boat, the water is flat, the sky and the sea enjoined in one monotone color. An arial view shows no land. There is no wind for the sail. There is no obvious way north, south, east or west; no clear direction and nothing propelling the boat forward.
It's not a frightening scene. Just dead quiet glassy water, humidity so thick you can feel it in your throat, close. It's a scene that is wistful for a cool breeze and for the clouds to part. It's waiting. It's not knowing how to get moving or which direction to go. It's not knowing what land will look like when you hit it. It's not being afraid of what you will find but confused about how you will get there. It is being alone in a vast sea, and either waiting for someone to come and tow you in or figuring out how to do it yourself. It's a lot different than being a leaf on the stream.
This is what my life feels like now. I can blame it on cancer and its aftermath. I can blame it on the stress and pressure from every side I feel so acutely that it pools upon my skin in bumps. I can blame it on loss and distrust and the feeling of being alone in the world. But the reality is that no matter the cause, it is a long journey of sailing back over these years that will take me to the place that I can call home.
*****************************************************************************
“And [he] sailed back over a year
and in and out of weeks
and through a day
and into the night of his very own room
where he found his supper waiting for him
and it was still hot”
― Maurice Sendak, Where the Wild Things Are
My mother used to remark that every time she sat down in a movie theater, she would fall asleep. These were in the post-Dad-dying days where her burdens were heavy and, I suspect, nights restless. We would load into the car during that hot Oklahoma summer and in the cool dark of the theater she'd drift off until one of us would gently nudge her as it was time to go.
In the darkness of the music auditorium I have a similar experience. Away from handheld devices and computers diverting my attention, from conversations and questions and things needing to be done, I let my mind drift and wander. I visualize my life in snapshots and pictures. I let the music seep in and replenish the dry landscape of my harried mind and heart. Within this space, I have learned to let go.
Tonight I spent a good long while with a blue-period painting projected on my mind. Eyes upon the back of a woman sitting in a small boat, the water is flat, the sky and the sea enjoined in one monotone color. An arial view shows no land. There is no wind for the sail. There is no obvious way north, south, east or west; no clear direction and nothing propelling the boat forward.
It's not a frightening scene. Just dead quiet glassy water, humidity so thick you can feel it in your throat, close. It's a scene that is wistful for a cool breeze and for the clouds to part. It's waiting. It's not knowing how to get moving or which direction to go. It's not knowing what land will look like when you hit it. It's not being afraid of what you will find but confused about how you will get there. It is being alone in a vast sea, and either waiting for someone to come and tow you in or figuring out how to do it yourself. It's a lot different than being a leaf on the stream.
This is what my life feels like now. I can blame it on cancer and its aftermath. I can blame it on the stress and pressure from every side I feel so acutely that it pools upon my skin in bumps. I can blame it on loss and distrust and the feeling of being alone in the world. But the reality is that no matter the cause, it is a long journey of sailing back over these years that will take me to the place that I can call home.
Sunday, July 21, 2013
circuitous routes
Steering through the small streets, squinting to remember the color and shape of houses I had seen just a week before, I used the Force to find my way back to the little white bungalow, perched in tree-lined shade on streets ordinal in number and alphabetical in line.
Ten days earlier I had arrived in Portland, skinny as an abandoned cat, grief-stricken, bereft and sad, newly repatriated after a dismal end of a romance over 9,500 miles away. I had come to take shelter in the warm home and friendship of my best friend and her husband, to stay a few days and renew, be with people that knew me best. Now with as much as I could cram into my car, I was heading back to start a new life.
I could fill up a page with words describe my friend: hilarious, brilliant, daring, feisty, creative, sharp as a whip, mischievous, unpredicatable, predictable. Equal parts beguiler and revolutionary, she had a personality that drew you in and held you fascinated. And, damn, was she funny.
We had a history of weaving in and out of each other's lives, taking long pauses after angry words, always reconnecting to be thick as thieves once again. Our friendship spanned decades, growing from the tumult of high school, through moves and loves and heartache and distance to new marriages, children and the fine crackling of expectations that accompanies a newly minted life. The many things that have shaped my life since that fateful decision to move to Portland (my husband, my career, Seattle) all hold her mark.
In short, I loved this friend. She was my constant, a phone call twice a day habit that I had grown both to depend on and to appreciate. Ours was one of the most important relationships of my life, not a girl crush but a deep and connected friendship. She was a taproot that held me fast in who I knew myself to be. I can hardly think back across my life without the best stories coming from our time together.
Five years have passed since this friendship ended abruptly and without obvious (to me) reason. For a time, I figured that we'd just run aground of something, that we would circle back into our relationship once again whenever what ever it was worked itself out. A year passed, then two, then my mother got sick and died, then I got cancer, and now I am here on another shore of living, the phantom feeling of someone missing popping up at moments when I feel most unguarded.
Because losing this friendship has been unmooring, disorienting, anxiety-provoking in ways that I'm just staring to unpack, I have decided to reach out to her, just to say hello and tell her that I am sorry if I did something wrong. I've decided to put up or to be prepared to just let it go. Thinking about this gives me a tightness in my chest that reminds of my six year old self trying to swim the length of the pool in a single, long-held, under-water breath. I feel my lungs burning and know that this is a surfacing that has to happen even though I want to continue to kick against it. But it's time to tidy things up, know where they stand, let things come full circle once and for all.
Tuesday, July 2, 2013
Pondering
For the Dead
I dreamed I called you on the telephone
to say: Be kinder to yourself
but you were sick and would not answer
The waste of my love goes on this way
trying to save you from yourself
I have often wondered about the leftover
energy, water rushing down a hill
long after the rains have stopped
or the fire you want to go to bed from
but cannot leave, burning-down but not burnt-down
the red coals more extreme, more curious
in their flashing and dying
than you wish they were
sitting there long after midnight
–Adrienne Rich
I dreamed I called you on the telephone
to say: Be kinder to yourself
but you were sick and would not answer
The waste of my love goes on this way
trying to save you from yourself
I have often wondered about the leftover
energy, water rushing down a hill
long after the rains have stopped
or the fire you want to go to bed from
but cannot leave, burning-down but not burnt-down
the red coals more extreme, more curious
in their flashing and dying
than you wish they were
sitting there long after midnight
–Adrienne Rich
Monday, July 1, 2013
Tracking Back
I've been given the gift of time this summer. Time and space and a small place to work through some things that have been nestled under my brain like the eversoslight pea that makes the princess' slumber impossible. This is the first time I've had this kind of space in over 10 years, the constancy of an infant or two and the well-worn path of life tying me close to home.
In this time, I've been tracking back over snow-glazed expanses of land looking for landmarks, broken branches, bootmarks in the snow to figure out how I've gotten to this place blank with light, somewhat foreign, white earth and cloud-embanked sky turned upside down. My inner compass has become shoddy to shot, so I stop and hunker down, try to devise a plan to lead myself out of this snowblind space. It's not all bad. It requires me to trust myself, to get back to my native skills, to remember what those I trust have taught me. It's good here, because against this blank palette my gut is returning. I am requiring myself to begin anew. The woman who was emerging from the salt and sea but a year ago now is bathed in snow, a mikvah of frost, the cold breath against warm lungs leaving me panting. I can keen and mourn here. I have to just be with myself here. I have to sit and take things as they come.
It's good. It's good. It's neither lonely nor scary nor inhospitable. It's space. And for as sterile and remote as it feels, it's beautiful. I am thankful, so thankful, just for the opportunity to breathe, to see, to wonder. I am thankful for the chance to appreciate, to reconcile, to dig back in, to shake things loose in my brain that I have stuffed away for so long. I don't fear the blankness, I revel in it. It's a reset, renewal, starting anew.
Over the next rise is that small, warm shed.
In this time, I've been tracking back over snow-glazed expanses of land looking for landmarks, broken branches, bootmarks in the snow to figure out how I've gotten to this place blank with light, somewhat foreign, white earth and cloud-embanked sky turned upside down. My inner compass has become shoddy to shot, so I stop and hunker down, try to devise a plan to lead myself out of this snowblind space. It's not all bad. It requires me to trust myself, to get back to my native skills, to remember what those I trust have taught me. It's good here, because against this blank palette my gut is returning. I am requiring myself to begin anew. The woman who was emerging from the salt and sea but a year ago now is bathed in snow, a mikvah of frost, the cold breath against warm lungs leaving me panting. I can keen and mourn here. I have to just be with myself here. I have to sit and take things as they come.
It's good. It's good. It's neither lonely nor scary nor inhospitable. It's space. And for as sterile and remote as it feels, it's beautiful. I am thankful, so thankful, just for the opportunity to breathe, to see, to wonder. I am thankful for the chance to appreciate, to reconcile, to dig back in, to shake things loose in my brain that I have stuffed away for so long. I don't fear the blankness, I revel in it. It's a reset, renewal, starting anew.
Over the next rise is that small, warm shed.
Monday, June 17, 2013
Lush with Potential
Thick dark pens, rows of them lined up according to fine or broad stroke, to color, to permanence. Rulers, lots of them, and watercolors and colored pencils the likes of which my aunt used to ferry back and forth from Europe to delight me as a child. White paper, tracing paper, rough sketch paper bound up in books for one's pocket. Tools for the hands, making visible ways of seeing with eyes that are fresh and new, untrained and excited, quiet.
I remember watching Nick build his store of art supplies for his foray into the study of landscape architecture. I was envious of his haul, of the boxes that would arrive daily from Dick Blick, reminding me of my highschool years where I would buy paint tubes upon pens upon sketch books just simply to have them nearby. I was never an actual artist, my fear of muddling the page or of looking foolish thwarting any desire I had to create something beautiful and meaningful. So the supplies sat on the shelf until they dried up or were given away. I watched in those months as Nick's natural talent emerged, his careful hand and attention to detail producing draft upon draft of spaces rich with meaning and lush with potential.
This Fall I begin a program of making, in a sense, having been accepted to a Masters in Design Methods program that will take me every other weekend to Chicago. I'm nervous, having been on my back foot for the past few months doing work that is not my strong suit and looking to a future where I have to take the pen to the page to create in a way beyond words.
The months leading up to this program are also a study in stillness, of seeing, of quiet, of reflection and introspection and all of those things you don't get to do when you are caught up in family and life and clutter and the distance that can separate you from your true self. I have been given the gift of time and space to sort things out. I have been given the opportunity to peel back through some blank pages and search for the words written in invisible ink underneath. It's beautiful and weird and heartbreakingly thanks-giving at the same time. I am awash in tears at the generosity of it all.
Sunday, June 16, 2013
Pausing
Today is one of those days that social media kicks your ass. Smiling faces of fathers beaming out of pictures with their children, grandchildren, exotic locales, dinner tables, weddings, you name it. I know there are a million stories behind those smiles, not all of them pleasant and certainly not all of them oft repeated in family conversations, but they are there, those fathers who still get to hug children and cook steaks and dance that awkward dad dance when they've had too much scotch.
After the great loss of 1987, I used to call my mom on Father's Day, just to be funny and say thanks for shoring up the ship on both sides. My mom was a helluva single mom, although calling her that seems weird given she had the means to raise children without financial panic. But digging deeper, I realize that being a single mom means much more than financial security. It was her going it alone, dealing with children who weren't easy to manage in a life too lonely sometimes. Single parenthood was more about relying on the network of friends who loved her dearly for moment of confiding and support. It was about being the rock for four kids who were navigating the terrain of being fatherless far earlier than they ever meant to be. She was dad and mom in one, Suz Hard as Nails. And a damn good both at that.
My children delight in their father, an amazing man whose gift for parenting is something he inherited from his own father and from whom I hope my son will learn. This is a day for recognizing that, rather than sitting afloat in the unanchored waters of a parentless life.
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